French National Registry of Rare Peritoneal Surface Malignancies (RENAPE Registry)

Status: Unknown status
Location: See all (33) locations...
Intervention Type: Other
Study Type: Observational [Patient Registry]
SUMMARY

Despite advances in the management of and changes in clinical practice, little is known about the epidemiology, patterns of care and outcomes of rare peritoneal surface malignancies patients in France. In order to better understand the characteristics of rare peritoneal surface malignancies and to evaluate treatment strategies, the RENAPE registry aims at the collection of data from patients presenting with a rare peritoneal surface malignancy in France. Data will be entered prospectively in a specifically designed and secured web database. All RENAPE's centres and physicians are invited to register patients with a rare peritoneal surface malignancy diagnosis and to participate to the registry. Data will be evaluated within regular time frames, focusing on types of rare peritoneal surface malignancies, treatment modalities and patient outcomes (e.g. survival, recurrence), thereby contributing to the better understanding of these rare cancers.

Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: No
View:

• Patients are eligible if they have a histologically proven rare peritoneal surface malignancy.

Locations
Other Locations
France
Institut de Cancérologie de l'Ouest - Paul Papin
Angers
CHU Jean Minjoz
Besancon
Institut Bergonié
Bordeaux
Centre François Baclesse
Caen
Centre Jean Perrin
Clermont-ferrand
CHU Estaing
Clermont-ferrand
AP-HP Louis MOURIER
Colombes
CHU Bocage
Dijon
CHU A. Michallon
La Tronche
Centre Oscar Lambret
Lille
CHRU Claude Huriez
Lille
Centre Léon Bérard
Lyon
Hôpital La Timône
Marseille
Institut Paoli Calmettes
Marseille
Institut du Cancer Montpellier
Montpellier
CHU Nantes Hôtel-Dieu
Nantes
CHU L'Archet II
Nice
AP-HP La Pitié-Salpêtrière
Paris
AP-HP St Antoine
Paris
Institut Curie
Paris
AP-HP Lariboisière
Paris Cedex 10
AP-HP Hôpîtal Europeen Georges Pompidou
Paris Cedex 15
Hospices Civils de Lyon - Centre Hospitalier Lyon Sud - Service de Chirurgie Générale et Digestive - 165 chemin du grand Revoyet,
Pierre-benite
CHU Poitiers
Poitiers
Hôpital Robert Debré
Reims
CHU Charles Nicolle
Rouen
Institut Cancérologie de l'Ouest - René Gauducheau
Saint Herblain
CHU Nord
St Etienne
CHRU Hautepierre
Strasbourg
Hôpital Purpan
Toulouse
Institut Claudius Regaud
Toulouse
Institut de Cancérologie de Lorraine
Vandoeuvre-les-nancy
Institut Gustave Roussy
Villejuif
Time Frame
Start Date: October 2010
Completion Date: December 2018
Participants
Target number of participants: 2171
Treatments
pseudomyxoma peritonei
Data from pseudomyxoma peritonei cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
peritoneal mesothelioma
Data from peritoneal mesothelioma cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
desmoplastic small round cell tumor
Data from desmoplastic small round cell tumor cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
psammocarcinoma
Data from primary peritoneal serous carcinoma cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
primary peritoneal serous carcinoma
Data from primary peritoneal serous carcinoma cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
diffuse peritoneal leiomyomatosis
Data from diffuse peritoneal leiomyomatosis cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
appendiceal mucinous neoplasms
Data from appendiceal mucinous neoplasms cases will be used to generate descriptive statistics on demographics, clinical characteristics including prevalence and incidence of co-morbidities, treatment patterns, and patient outcomes (resulting from treatment or disease).
Sponsors
Leads: Hospices Civils de Lyon

This content was sourced from clinicaltrials.gov

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