Coordination of Rare Diseases at Sanford

Trial Information
Status: Recruiting
Location: See all (2) locations...
Study Type: Observational [Patient Registry]
Summary

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access. Visit sanfordresearch.org/CoRDS to enroll.

Am I eligible for this trial?
Participation Requirements
Sex:
All
Healthy Volunteers:
No

• Diagnosis of a rare disease, a disease of unknown prevalence, undiagnosed or an unaffected carrier of a rare/uncommon disease

Where is this trial taking place?
United States
South Dakota
Sanford Health
Recruiting
Sioux Falls
Other Locations
Australia
Online Patient Enrollment System
Recruiting
Sydney
Who do I contact about this trial?
Primary
CoRDS Team
cords@sanfordhealth.org
1-877-658-9192
When is this trial taking place?
Start Date: July 2010
Estimated Completion Date: December 2100
How many participants will be in this trial?
Target number of participants: 20000
Who are the authors of this trial?
Benjamin Forred
What other conditions are being studied in this trial?

This content was sourced from clinicaltrials.gov