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Caregiving Networks Across Disease Context and the Life Course: A Comparative Longitudinal Study

Phase 1 Intrathecal Lumbar Administration of AAV9/CLN7 for Treatment of CLN7 Disease

Natural History Study of Batten Disease

Cerliponase Alfa Observational Study

A Study in Subjects With Neuronal Ceroid Lipofuscinoses Taking Trehalose

Using Normalization Process Theory to Evaluate Providing Pediatric Palliative Care at End-of-Life as Web-Based Training Intervention for Nurses:

Natural History and Long Term Clinical Assessments of All Forms of Neuronal Ceroid Lipofuscinoses - Capturing Key Symptoms and Disease Progression as Part of the Independent, International NCL DEM-CHILD Patient Database

Long-Term Follow-Up of AT-GTX-501 scAAV9 Gene Transfer in Subjects With CLN6 Batten Disease

A Natural History and Outcome Measure Discovery Study of Variant Late Infantile Neuronal Ceroid Lipofuscinosis Type 5 (CLN5) and Variant Late Infantile Neuronal Ceroid Lipofuscinosis Type 7 (CLN7)

Examining Developmental Outcomes of Children Diagnosed With CLN2 Disease

Investigations of Juvenile Neuronal Ceroid Lipofuscinosis (CLN3)

Natural History Study of Batten's CLN6 Disease

Showing 1-12 of 16