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Last Updated: 11/29/2022

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The Congenital Dyserythropoietic Anemia Registry (CDAR)

Summary: The investigators propose the creation and maintenance of a comprehensive registry for patients with the diagnosis of Congenital Dyserythropoietic Anemia (CDA) in North America. The goal of this registry will be to collect long-term confidential data on patients with CDA in the US, Canada, and Mexico and create a bio-repository of de-identified patient blood and bone marrow specimens as a tool for...

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Last Updated: 11/29/2022