The International Registry for Leigh Syndrome
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
The purpose of this study is to develop a database containing clinical and laboratory information for patients with Leigh syndrome. The goal is to provide a greater understanding of Leigh syndrome allowing further characterization of this disease.
Eligibility
Participation Requirements
Sex: All
Maximum Age: 100
Healthy Volunteers: f
View:
• All participants with a diagnosis of Leigh syndrome will be invited to participate
Locations
United States
Texas
The University of Texas Health Science Center at Houston
RECRUITING
Houston
Contact Information
Primary
Mary Kay Koenig, MD
leigh@uth.tmc.edu
713-500-7164
Backup
William Guerra
leigh@uth.tmc.edu
713-500-7164
Time Frame
Start Date: 2015-06-17
Estimated Completion Date: 2030-06-17
Participants
Target number of participants: 200
Treatments
Leigh syndrome
All people diagnosed with Leigh syndrome.
Authors
Rahmat Adejumo
Related Therapeutic Areas
Sponsors
Leads: The University of Texas Health Science Center, Houston