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Last Updated: 09/18/2022

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Coordination of Rare Diseases at Sanford

Summary: CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, in...

Long Term Assessment and Outcome of Adult Patients With Congenital Genitourinary Abnormalities.

Summary: A transitional Urology database was created in parallel with National Spina Bifida registry to follow patients with complex congenital urogenital anomalies and be able to prospectively evaluate them. The investigators obtained the standardized questionnaires to collect long-term data regarding patients' genitourinary status including urine and fecal continence, sexuality, fertility, and pelvic hea...

Screening for Sacral Agenesis in Offspring of Mothers With Diabetes in Pregnancy

Summary: Babies born to mothers with pregestational diabetes will be screened with parental consent for sacral agenesis
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Last Updated: 09/18/2022