The 20 Best Batten Disease Doctors Near Me in Illinois, US

Find the Top Batten Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 12 doctor with experience in Batten Disease near Illinois, US. Of these, 7 are Experienced, 4 are Advanced and 1 are Distinguished.

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12 providers found
    Distinguished in Batten Disease
    Pediatric Neurology
    Distinguished in Batten Disease
    Pediatric Neurology

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Elizabeth Berry is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Berry is rated as a Distinguished provider by MediFind in the treatment of Batten Disease. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Fragile X Syndrome, Niemann-Pick Disease, Autism Spectrum Disorder, and Rett Syndrome.

    Advanced in Batten Disease
    Pediatric Neurology
    Advanced in Batten Disease
    Pediatric Neurology

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Lubov Romantseva is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Romantseva is rated as an Advanced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Seizures, CLN3 Disease, CLN5 Disease, and Batten Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    34+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dimitri Krainc is a Neurologist practicing medicine in Chicago, Illinois. He has been practicing medicine for over 34 years. Dr. Krainc is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Movement Disorders, Parkinson's Disease, Farber Lipogranulomatosis, Drug Induced Dyskinesia, and Deep Brain Stimulation. Dr. Krainc is board certified in American Board Of Psychiatry And Neurology - Neurology (Certified).

    Learn about our expert tiers
    Experienced in Batten Disease
    Experienced in Batten Disease

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Sunila O'connor is a Neurologist practicing medicine in Chicago, Illinois. Dr. O'connor is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Status Epilepticus, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, and Epilepsy Juvenile Absence.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joshua Goldstein is a Neurologist practicing medicine in Chicago, Illinois. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Status Epilepticus, Seizures, Epilepsy, and Landau-Kleffner Syndrome.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Northwestern Medicine Central Dupage Hospital

    25 N Winfield Rd, 
    Winfield, IL 
    Languages Spoken:
    English

    Diana Sieciechowicz is a Neurologist practicing medicine in Winfield, Illinois. Dr. Sieciechowicz is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Partial Seizure, and Absence Seizure.

    Advanced in Batten Disease
    Pediatrics
    Advanced in Batten Disease
    Pediatrics

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joshua Baker is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Baker is rated as an Advanced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 152 other conditions, according to our data. His clinical expertise encompasses Urea Cycle Disorders (UCD), Ornithine Transcarbamylase Deficiency, Acid Sphingomyelinase Deficiency (ASMD), and Propionic Acidemia.

    Advanced in Batten Disease
    Neurology | Pediatrics
    Advanced in Batten Disease
    Neurology | Pediatrics

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Tamar Caceres is a Neurologist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Caceres is rated as an Advanced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 88 other conditions, according to our data. Her clinical expertise encompasses Trisomy 2 Mosaicism, Trisomy 3 Mosaicism, Mosaic Trisomy 7, and Trisomy 12 Mosaicism.

    Advanced in Batten Disease
    Medical Genetics | Pediatrics
    Advanced in Batten Disease
    Medical Genetics | Pediatrics

    Washington University Physicians In Illinois Inc

    4500 Memorial Dr, 
    Belleville, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Patricia Dickson is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Belleville, Illinois. Dr. Dickson is rated as an Advanced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3B (MPS IIIB, Sanfilippo Syndrome B). Dr. Dickson is currently accepting new patients.

    Experienced in Batten Disease
    Pediatric Neurology
    Experienced in Batten Disease
    Pediatric Neurology

    Precision Epilepsy PLLC

    IL 
    Languages Spoken:
    English
    Offers Telehealth

    John Millichap is a Pediatric Neurologist practicing medicine in Illinois. Dr. Millichap is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses West Syndrome, Spasmus Nutans, Epilepsy in Children, and Epilepsy. Dr. Millichap is board certified in Epilepsy, American Board Of Psychiatry & Neurology.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Dina Soloveychik is a Neurologist practicing medicine in Chicago, Illinois. Dr. Soloveychik is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Partial Seizure, Seizures, Absence Seizure, and Epilepsy Juvenile Absence.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Rebecca Garcia is a Neurologist practicing medicine in Chicago, Illinois. Dr. Garcia is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Partial Seizure, Photosensitive Epilepsy, and Partial Familial Epilepsy.

    Showing 1-12 of 12

    Last Updated: 04/28/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in Illinois, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in Illinois, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Batten Disease doctors in Illinois, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in Illinois, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in Illinois, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in Illinois, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in Illinois, US?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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