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Last Updated: 09/18/2022

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Piloting an Early Intervention Program for Infants With Rare Neurogenetic Disorders

Summary: The objective is to develop and test, through an iterative process, an intervention to address and support the development of infants with a confirmed diagnosis of neurogenetic disorders that leave individuals at risk for developmental delays or intellectual and developmental disabilities. The proposed project will capitalize and expand upon existing empirically based interventions designed to imp...

Development of Clinical Database of Individuals With Smith-Magenis Syndrome

Summary: This database will be used to better understand the sleep problems of people with SMS. This clinical database will be a part of a larger Smith-Magenis Patient Registry used to create an awareness campaign around SMS and the sleep disturbances that are characteristic of the disorder.
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Last Updated: 09/18/2022