Learn About Tubular Aggregate Myopathy

Condition 101 content is not available at this time, but we are continually updating the site. Please check back.

However, there may be experts who have treated this or similar conditions in our Find a Doctor section and research may be available in our Latest Advances section.

Who are the top Tubular Aggregate Myopathy Local Doctors?
Elite
Highly rated in
39
conditions
Neurology
Pediatrics

3401 Civic Center Blvd 
Philadelphia, PA 19104

Carsten Bonnemann is a Neurologist and a Pediatrics doctor in Philadelphia, Pennsylvania. Dr. Bonnemann is rated as an Elite doctor by MediFind in the treatment of Tubular Aggregate Myopathy. He is also highly rated in 39 other conditions, according to our data. His top areas of expertise are Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Benign Autosomal Dominant Myopathy. He is licensed to treat patients in Pennsylvania. Dr. Bonnemann is currently accepting new patients.

Elite
Highly rated in
8
conditions

University Of Western Australia

School Of Biomedical Sciences, Faculty Of Health And Medical Sciences 
Nedlands, WA, AU 

Kristen Nowak is in Nedlands, Australia. Nowak is rated as an Elite expert by MediFind in the treatment of Tubular Aggregate Myopathy. She is also highly rated in 8 other conditions, according to our data. Her top areas of expertise are Nemaline Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

 
 
 
 
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Elite
Highly rated in
16
conditions

University Of Strasbourg

Strasbourg, FR 

Johann Bohm is in Strasbourg, France. Bohm is rated as an Elite expert by MediFind in the treatment of Tubular Aggregate Myopathy. They are also highly rated in 16 other conditions, according to our data. Their top areas of expertise are Stormorken Syndrome, Centronuclear Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

What are the Latest Advances for Tubular Aggregate Myopathy?
Daratumumab for treatment-refractory antibody-mediated diseases in neurology.
Clinical and genetic features of infancy-onset congenital myopathies from a Chinese paediatric centre.
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RYR1-related myopathies: Expanding the spectrum of morphological presentation.
What are the latest Tubular Aggregate Myopathy Clinical Trials?
Myotubular and Centronuclear Myopathy Patient Registry
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TAM4MTM: A Phase 1/2 Randomized, Placebo-Controlled, Double-Blinded, Single Crossover Study to Determine the Safety and Efficacy of Tamoxifen Therapy for Myotubular Myopathy (XLMTM)