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    Last Updated: 10/30/2025

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    MediFind found 3 doctor with experience in Dominant Dystrophic Epidermolysis Bullosa near Estonia. Of these, 3 are Experienced.

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    3 providers found
      Experienced in Dominant Dystrophic Epidermolysis Bullosa

      Gisele Bonne
      Experienced in Dominant Dystrophic Epidermolysis Bullosa

      Gisele Bonne
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Gisele Bonne practices in Estonia. Ms. Bonne is rated as an Experienced expert by MediFind in the treatment of Dominant Dystrophic Epidermolysis Bullosa. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Cramp-Fasciculation Syndrome, and Dilated Cardiomyopathy (DCM).

      Experienced in Dominant Dystrophic Epidermolysis Bullosa

      Rabah Ben Yaou
      Experienced in Dominant Dystrophic Epidermolysis Bullosa

      Rabah Ben Yaou
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Rabah Ben Yaou practices in Estonia. Ben Yaou is rated as an Experienced expert by MediFind in the treatment of Dominant Dystrophic Epidermolysis Bullosa. Their top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Becker Muscular Dystrophy, and Duchenne Muscular Dystrophy.

      Experienced in Dominant Dystrophic Epidermolysis Bullosa

      Isabelle Nelson
      Experienced in Dominant Dystrophic Epidermolysis Bullosa

      Isabelle Nelson
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Isabelle Nelson practices in Estonia. Ms. Nelson is rated as an Experienced expert by MediFind in the treatment of Dominant Dystrophic Epidermolysis Bullosa. Her top areas of expertise are Emery-Dreifuss Muscular Dystrophy, Limb-Girdle Muscular Dystrophy, Lethal Congenital Contracture Syndrome, and X-Linked Dominant Scapuloperoneal Myopathy.

      Learn about our expert tiers
      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-3 of 3

      Last Updated: 10/30/2025

      What is the definition of Dominant Dystrophic Epidermolysis Bullosa?

      Dominant dystrophic epidermolysis bullosa (DDEB) is a type of epidermolysis bullosa (EB), which is a group of rare inherited conditions in which the skin blisters extremely easily. DDEB is one of the milder forms of EB, although the severity is variable. Blisters may be present at birth, but typically appear during early childhood; occasionally they do not develop until later in life. Blisters often become more numerous and tend to occur over vulnerable sites such as knees, ankles, elbows and knuckles. In adulthood, they usually become less frequent and scars fade. Other signs and symptoms of DDEB may include dystrophic or absent nails, constipation, dental caries and swallowing problems. It is caused by genetic changes in the COL7A1 gene and is inherited in an autosomal dominant manner.

      When should I see a Dominant Dystrophic Epidermolysis Bullosa doctor in Estonia?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dominant Dystrophic Epidermolysis Bullosa doctor in Estonia?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Dominant Dystrophic Epidermolysis Bullosa doctor in Estonia?

      You can find a Dominant Dystrophic Epidermolysis Bullosa doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Dominant Dystrophic Epidermolysis Bullosa doctors in Estonia?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dominant Dystrophic Epidermolysis Bullosa doctors in Estonia?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dominant Dystrophic Epidermolysis Bullosa doctor in Estonia?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dominant Dystrophic Epidermolysis Bullosa doctor search results page. 

      Why is it important to get a second opinion from a different Dominant Dystrophic Epidermolysis Bullosa doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dominant Dystrophic Epidermolysis Bullosa doctor in Estonia?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dominant Dystrophic Epidermolysis Bullosa doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dominant Dystrophic Epidermolysis Bullosa doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dominant Dystrophic Epidermolysis Bullosa doctors in Estonia?

      Look for the filter feature on the left side of the Dominant Dystrophic Epidermolysis Bullosa doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dominant Dystrophic Epidermolysis Bullosa doctor that offers video calls?

      Look for the filter feature on the left-side of the Dominant Dystrophic Epidermolysis Bullosa doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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