Rare Patient Voice provides patients and caregivers an opportunity to share their opinions through surveys and interviews to improve medical products and services. The RPV community has over 100,000 patients and caregivers across more than 600 different conditions, both rare and non-rare.

EGFR Resisters is a patient-driven community, dedicated to changing EGFR+ lung cancer into a manageable chronic disease. The goal is to improve outcomes for people with EGFR+ lung cancer by accelerating research. Access to the closed Facebook group for patients and caregivers only can be found here.

The Male Breast Cancer Coalition exists to support and advocate for men diagnosed with breast cancer.

Alex’s Lemonade Stand Foundation (ALSF) is changing the lives of children with cancer by funding impactful research, raising awareness, supporting families and empowering everyone to help cure childhood cancer.

Chive Charities supports veterans, first responders, and rare medical diagnosees with life-changing grants and spreads awareness through sharing the personal stories of grit, courage, and never giving up. Since 2012, Chive Charities has provided grants to over 270 rare medical recipients with more than $10.5M in aid.

Simon’s Heart is a nonprofit organization dedicated to raising awareness about, and preventing deaths from, conditions that cause sudden cardiac arrest in children

Pompe Alliance provides supportive services, education and information to patients, caregivers, medical professionals and community stakeholders involved with Pompe disease.

Keep Punching supports patients, healthcare providers, and researchers in their fight to prevent and eradicate brain cancer and minimize treatment-related side effects that may adversely impact function and comfort.