The 20 Best Nemaline Myopathy Doctors in France

Find the Top Nemaline Myopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 91 doctor with experience in Nemaline Myopathy near France. Of these, 71 are Experienced, 16 are Advanced and 4 are Distinguished.

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91 providers found
    Distinguished in Nemaline Myopathy

    Jocelyn F. Laporte
    Distinguished in Nemaline Myopathy

    Jocelyn F. Laporte
    Illkirch-graffenstaden, FR 

    Jocelyn Laporte practices practicing medicine in Illkirch-graffenstaden, France. Ms. Laporte is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Distinguished in Nemaline Myopathy

    Johann Bohm
    Distinguished in Nemaline Myopathy

    Johann Bohm
    Illkirch-graffenstaden, FR 

    Johann Bohm practices practicing medicine in Illkirch-graffenstaden, France. Bohm is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Stormorken Syndrome.

    Distinguished in Nemaline Myopathy

    Charlotte Gineste
    Distinguished in Nemaline Myopathy

    Charlotte Gineste
    Illkirch-graffenstaden, FR 

    Charlotte Gineste practices practicing medicine in Illkirch-graffenstaden, France. Ms. Gineste is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Nemaline Myopathy.

    Learn about our expert tiers
    Distinguished in Nemaline Myopathy

    Julien Gondin
    Distinguished in Nemaline Myopathy

    Julien Gondin
    Lyon, FR 

    Julien Gondin practices practicing medicine in Lyon, France. Mr. Gondin is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Nemaline Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Advanced in Nemaline Myopathy

    Angeline Madelaine
    Advanced in Nemaline Myopathy

    Angeline Madelaine
    Paris, FR 

    Angeline Madelaine practices practicing medicine in Paris, France. Ms. Madelaine is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Nemaline Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Nemaline Myopathy

    John Rendu
    Advanced in Nemaline Myopathy

    John Rendu
    Grenoble, FR 

    John Rendu practices practicing medicine in Grenoble, France. Mr. Rendu is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Central Core Disease, Lowe Syndrome, Centronuclear Myopathy, and Tubular Aggregate Myopathy.

    Advanced in Nemaline Myopathy

    Guy Brochier
    Advanced in Nemaline Myopathy

    Guy Brochier
    Paris, FR 

    Guy Brochier practices practicing medicine in Paris, France. Mr. Brochier is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Centronuclear Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Nemaline Myopathy

    David Bendahan
    Advanced in Nemaline Myopathy

    David Bendahan
    Marseille, FR 

    David Bendahan practices practicing medicine in Marseille, France. Mr. Bendahan is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Nemaline Myopathy, Cramp-Fasciculation Syndrome, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Advanced in Nemaline Myopathy

    Emmanuelle Lacene
    Advanced in Nemaline Myopathy

    Emmanuelle Lacene
    Paris, FR 

    Emmanuelle Lacene practices practicing medicine in Paris, France. Ms. Lacene is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, Nemaline Myopathy, and Bone Marrow Aspiration.

    Advanced in Nemaline Myopathy

    Clemence Labasse
    Advanced in Nemaline Myopathy

    Clemence Labasse
    Paris, FR 

    Clemence Labasse practices practicing medicine in Paris, France. Labasse is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Centronuclear Myopathy, Nemaline Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in Nemaline Myopathy

    Thierry Larmonier
    Advanced in Nemaline Myopathy

    Thierry Larmonier
    Evry, FR 

    Thierry Larmonier practices practicing medicine in Evry, France. Mr. Larmonier is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Central Core Disease, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Advanced in Nemaline Myopathy

    Safaa Saker
    Advanced in Nemaline Myopathy

    Safaa Saker
    Evry, FR 

    Safaa Saker practices practicing medicine in Evry, France. Ms. Saker is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Central Core Disease, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Nemaline Myopathy

    Julien C. Faure
    Advanced in Nemaline Myopathy

    Julien C. Faure
    Grenoble, FR 

    Julien Faure practices practicing medicine in Grenoble, France. Mr. Faure is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Distal Arthrogryposis Type 6, Distal Arthrogryposis, Congenital Contractures, and Arthrogryposis Multiplex Congenita.

    Advanced in Nemaline Myopathy

    Teresinha Evangelista
    Advanced in Nemaline Myopathy

    Teresinha Evangelista
    Paris, FR 

    Teresinha Evangelista practices practicing medicine in Paris, France. Evangelista is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 12 other conditions, according to our data. Their clinical expertise encompasses Cramp-Fasciculation Syndrome, Facioscapulohumeral Muscular Dystrophy (FSHD), Congenital Myasthenic Syndrome, Limb-Girdle Muscular Dystrophy, and Bone Marrow Aspiration.

    Advanced in Nemaline Myopathy

    Xaviere Lornage
    Advanced in Nemaline Myopathy

    Xaviere Lornage
    Illkirch-graffenstaden, FR 

    Xaviere Lornage practices practicing medicine in Illkirch-graffenstaden, France. Lornage is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Amyotonia Congenita, Myotonia Congenita, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in Nemaline Myopathy

    Valerie Biancalana
    Advanced in Nemaline Myopathy

    Valerie Biancalana
    Strasbourg, FR 

    Valerie Biancalana practices practicing medicine in Strasbourg, France. Ms. Biancalana is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Centronuclear Myopathy.

    Advanced in Nemaline Myopathy

    Christophe Vilmen
    Advanced in Nemaline Myopathy

    Christophe Vilmen
    Marseille, FR 

    Christophe Vilmen practices practicing medicine in Marseille, France. Mr. Vilmen is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Nemaline Myopathy, Sickle Cell Disease, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in Nemaline Myopathy

    Annie Laquerriere
    Advanced in Nemaline Myopathy

    Annie Laquerriere
    Rouen, FR 

    Annie Laquerriere practices practicing medicine in Rouen, France. Ms. Laquerriere is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Achalasia Microcephaly Syndrome, Microcephaly, Congenital Contractures, and Arthrogryposis Multiplex Congenita.

    Advanced in Nemaline Myopathy

    Olivier Benveniste
    Advanced in Nemaline Myopathy

    Olivier Benveniste
    Paris, FR 

    Olivier Benveniste practices practicing medicine in Paris, France. Mr. Benveniste is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Necrotizing Myopathy (NM), Antisynthetase Syndrome, Myositis, Inclusion Body Myositis, and Kidney Transplant.

    Advanced in Nemaline Myopathy

    Michel Fardeau
    Advanced in Nemaline Myopathy

    Michel Fardeau
    Paris, FR 

    Michel Fardeau practices practicing medicine in Paris, France. Mr. Fardeau is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, and Centronuclear Myopathy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 91

    Last Updated: 04/28/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

    When should I see a Nemaline Myopathy doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Nemaline Myopathy doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Nemaline Myopathy doctor in France?

    You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Nemaline Myopathy doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Nemaline Myopathy doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Nemaline Myopathy doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Nemaline Myopathy doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Nemaline Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Nemaline Myopathy doctors in France?

    Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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