Acute Interstitial Pneumonia Clinical Trials

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Self-efficacy and Well-being of Patients With Fibrotic Interstitial Lung Disease - an Observational Study

Status: Recruiting
Location: See all (2) locations...
Intervention Type: Behavioral, Other
Study Type: Observational
SUMMARY

Patients with fibrotic insterstitial lung disease (ILD) participating in inpatient rehabilitation or in outpatient pulmonary care will be invited to participate in this observational study. Patients will fill out questionnaire regarding quality of life and symptoms at baseline and follow-up (at the end of rehabilitation or after the second outpatient ILD consultation). Additionally, clinical data obtained in clinical routine or for the IIP registry will be used for this project. The aim is to assess changes in self-efficacy and quality of life over time and to establish a control cohort for a later feasibility study on a educational and self-management intervention (currently in planning).

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
View:

• For Berner Reha Zentrum only: Diagnosis of a FILD as major indication for pulmonary rehabilitation

• For Inselspital only: Enrolled in Idiopathic interstitial Pneumonia (IIP) cohort study (Nr. 246/15 / PB\_2016-01524) and agreed to further use of data for further research purpose

• Age ≥ 18 years

• Written informed consent

Locations
Other Locations
Switzerland
Berner Reha Zentrum, Rehabilitation & Sports Medicine, Insel Group, University Hospital Berne
RECRUITING
Bern
Department of Pulmonary Medicine, Inselspital, Bern University Hospital, University of Bern
RECRUITING
Bern
Contact Information
Primary
Thimo Marcin, PhD
t.marcin@rehabern.ch
+41 33 244 30 48
Backup
Thomas Riegler, Msc
riel@zhaw.ch
Time Frame
Start Date: 2023-11-08
Estimated Completion Date: 2028-08-30
Participants
Target number of participants: 80
Treatments
Observational Group
Patients that were included during the observational phase before implementation of the blended patient education and self-management (PESM) programme or patients that refused to participate in the PESM programme after implementation. Patients receive the usual care clinical routine programme
Self-management Group
Patients that were included in the study after the implementation of the blended patient education and self-management (PESM) programme and acceppted to participate in the PESM programme
Sponsors
Leads: Berner Reha Zentrum AG
Collaborators: Zurich University of Applied Sciences, Insel Gruppe AG, University Hospital Bern, University of Zurich

This content was sourced from clinicaltrials.gov