An Exploration of the Experiences and Support Needs of Young Adults With Severe and Uncontrolled Asthma

Status: Recruiting
Location: See location...
Intervention Type: Other
Study Type: Observational
SUMMARY

Asthma is a serious long-term lung condition caused by swollen airways that narrow. This causes wheezing, chest tightness, and breathlessness. Most asthma is well-controlled with medication. However, 5-10% of asthmatics have severe asthma where treatment does not control symptoms and up to 67% of asthmatics have uncontrolled asthma, caused by not always taking medication as recommended, lifestyle choices or other health problems worsening their asthma. In the UK, asthma affects around 800,000 young adults. This group is at high-risk of having poor asthma control, worse outcomes than other age-groups. This is because young adults need care that differs from other age-groups and current care is not meeting these needs. There is little information on the experiences and needs of this group and very few studies exist, exploring how to improve care. This study will explore the experiences and needs of young adults (age16-25) with severe and uncontrolled asthma. Methods. The investigators will perform two study-arms with young adults with severe/uncontrolled asthma in Manchester and Liverpool severe asthma centres: Study-arm 1: Interview participants using photographs chosen by them to help explain their experiences of living with asthma and support that they need. Study arm 2: Perform group interviews to understand participants' thoughts around the insights from study-arm 1 combined with their own experiences. To explore and develop ideas on how to improve future care. At the end of both study arms, a workshop involving patients and stakeholders involved in delivering care will take place, to identify a joint goal of how to improve care in this cohort and map ways in which to achieve this. Together, the study results and workshop will increase our understanding of the experiences and needs of young adults with asthma. Helping us to identify new ways to improve care which can be tested in future research.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 16
Maximum Age: 25
Healthy Volunteers: f
View:

• A confirmed diagnosis of severe or uncontrolled asthma under the care of the Manchester or Liverpool severe asthma services

• Participants aged 16-25 years.

• Informed consent provided.

Locations
Other Locations
United Kingdom
Severe asthma services based at both Manchester University Foundation NHS trust and Liverpool University Foundation NHS Trust
RECRUITING
Manchester
Contact Information
Primary
Leanne - Jo Holmes, Mres
leannejo.holmes@mft.nhs.uk
+44 01619987070
Time Frame
Start Date: 2024-11-25
Estimated Completion Date: 2025-10-31
Participants
Target number of participants: 46
Treatments
young adults with severe and or uncontrolled asthma
no intervention to be administered. Participants will be asked to participate in 1-1 interviews and or focus group interviews
Related Therapeutic Areas
Sponsors
Collaborators: Burdett Trust for Nursing, Liverpool University Hospitals NHS Foundation Trust, University of Manchester
Leads: Manchester University NHS Foundation Trust

This content was sourced from clinicaltrials.gov