The 20 Best Bardet-Biedl Syndrome Doctors Near Me in Virginia, US

Find the Top Bardet-Biedl Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 31 doctor with experience in Bardet-Biedl Syndrome near Virginia, US. Of these, 31 are Experienced.

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31 providers found
    Experienced in Bardet-Biedl Syndrome
    Experienced in Bardet-Biedl Syndrome

    Inova Schar Cancer Institute

    8081 Innovation Park Dr, Level 5 - Chesapeake Clinic, 
    Fairfax, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Jennifer DeSimone is a specialty care physician board certified in dermatology. She joined Inova Medical Group with 5 years of clinical experience. She has a special interest in management of cutaneous lymphomas, skin cancer in organ transplant recipients and other complex skin cancers. Most recently Dr. DeSimone served as a Director of Cutaneous Lymphoma. Dr. DeSimone became interested in lymphomas of the skin because of the rarity of the disease and the need for greater understanding of its origin and development of more effective therapy. Her goal is to help educate her patients about skin cancer etiology, management and importantly, prevention. A native of Northern Virginia, Dr. DeSimone currently resides in Fairfax County with her husband and two children. In her spare time she enjoys cooking, entertaining, and trail running. Dr. Desimone is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Cutaneous T-Cell Lymphoma (CTCL), Mycosis Fungoides, T-Cell Lymphoma, and Lymphomatoid Papulosis.

    Experienced in Bardet-Biedl Syndrome
    Endocrinology
    Experienced in Bardet-Biedl Syndrome
    Endocrinology

    Mayo Clinic-Rochester

    5716 Cleveland St Ste 200, 
    Virginia Beach, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Oksana Hamidi is an Endocrinologist practicing medicine in Virginia Beach, Virginia. Dr. Hamidi is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 62 other conditions, according to our data. Her clinical expertise encompasses Cushing's syndrome, Addison's Disease, Pheochromocytoma, Hormone Replacement Therapy (HRT), and Liver Embolization.

    Experienced in Bardet-Biedl Syndrome
    Experienced in Bardet-Biedl Syndrome

    UVA Health Cardiology, Part Of Culpeper Medical Center

    501 Sunset Ln, 
    Culpeper, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Parminder Kaur is a Cardiologist practicing medicine in Culpeper, Virginia. Dr. Kaur is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Liver Failure, Pycnodysostosis, COVID-19, Fainting, and Endoscopy.

    Learn about our expert tiers
    Experienced in Bardet-Biedl Syndrome
    Pediatric Cardiology
    Experienced in Bardet-Biedl Syndrome
    Pediatric Cardiology

    The Battle Building At UVA Children's Hospital

    1204 W Main St, 
    Charlottesville,, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Jeffrey Vergales is a Pediatric Cardiologist practicing medicine in Charlottesville,, Virginia. Dr. Vergales is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Ventricular Septal Defects, Patent Ductus Arteriosus, and Mitral Atresia.

    Experienced in Bardet-Biedl Syndrome
    Endocrinology
    Experienced in Bardet-Biedl Syndrome
    Endocrinology

    UVA Health Pituitary Clinic

    415 Ray C Hunt Dr Fl Second Ste 2100, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Gregory Hong is an Endocrinologist practicing medicine in Charlottesville, Virginia. Dr. Hong is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Prolactinoma, Pituitary Tumor, Hypothalamic Tumor, and Acromegaly.

    Experienced in Bardet-Biedl Syndrome
    Pediatric Cardiology
    Experienced in Bardet-Biedl Syndrome
    Pediatric Cardiology

    Carilion Children's Pediatric Cardiology

    4348 Electric Rd, 
    Roanoke, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Asma Habib is a Pediatric Cardiologist practicing medicine in Roanoke, Virginia. Dr. Habib is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Tricuspid Atresia, Pulmonary Valves Agenesis, Pulmonary Atresia, and Transposition of the Great Arteries.

    Experienced in Bardet-Biedl Syndrome
    Experienced in Bardet-Biedl Syndrome

    Office

    7001 Forest Ave Ste 300, 
    Richmond, VA 
    Languages Spoken:
    English

    Camille Haisley is a Dermatologist practicing medicine in Richmond, Virginia. Dr. Haisley is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Familial Atypical Multiple Mole Melanoma Syndrome, Giant Congenital Melanocytic Nevus, Giant Congenital Nevus, and Neurocutaneous Melanosis.

    Experienced in Bardet-Biedl Syndrome
    Pediatric Cardiology
    Experienced in Bardet-Biedl Syndrome
    Pediatric Cardiology

    Pediatric Cardiology Associates

    8500 Executive Park Ave Ste 110, 
    Fairfax, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Annette Ansong is a Pediatric Cardiologist practicing medicine in Fairfax, Virginia. Dr. Ansong is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Interrupted Aortic Arch, Coronary Artery Fistula, Ventricular Septal Defects, and Congenital Heart Disease (CHD).

    Experienced in Bardet-Biedl Syndrome
    Neurology
    Experienced in Bardet-Biedl Syndrome
    Neurology

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
    Languages Spoken:
    English

    Murad Omery is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Omery is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Aphantasia, Migraine, and Concussion.

    Experienced in Bardet-Biedl Syndrome
    Experienced in Bardet-Biedl Syndrome

    UVA Health Heart And Vascular Clinic At Primary Care Center

    1221 Lee St Fl 2, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Randy Ramcharitar is a Cardiologist practicing medicine in Charlottesville, Virginia. Dr. Ramcharitar is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Arterial Insufficiency, Pulmonary Embolism, Thoracic Aortic Aneurysm, and Aortic Dissection.

    Experienced in Bardet-Biedl Syndrome
    Medical Genetics | Pediatrics
    Experienced in Bardet-Biedl Syndrome
    Medical Genetics | Pediatrics

    University Of Virginia Physicians Group

    1204 W Main St, 
    Charlottesville, VA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Christina Peroutka is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Charlottesville, Virginia. Dr. Peroutka is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Hypophosphatasia (HPP), Maternal Hyperphenylalaninemia, Dihydropteridine Reductase Deficiency, and Phenylketonuria (PKU). Dr. Peroutka is currently accepting new patients.

    Experienced in Bardet-Biedl Syndrome
    Hematology
    Experienced in Bardet-Biedl Syndrome
    Hematology

    Riverside Hospital Inc

    120 Kings Way Ste 3100, 
    Williamsburg, VA 
    Languages Spoken:
    English

    John Miller is a Hematologist practicing medicine in Williamsburg, Virginia. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 75 other conditions, according to our data. His clinical expertise encompasses Monoclonal Gammopathy of Undetermined Significance (MGUS), Paget Disease of the Breast, Large-Cell Immunoblastic Lymphoma, and Chronic Lymphocytic Leukemia (CLL).

    Experienced in Bardet-Biedl Syndrome
    Family Medicine
    Experienced in Bardet-Biedl Syndrome
    Family Medicine

    Vpa PC

    263 McLaws Cir Ste 105, 
    Williamsburg, VA 
    Languages Spoken:
    English

    Brian Doeren is a primary care provider, practicing in Family Medicine in Williamsburg, Virginia. Dr. Doeren is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Malnutrition, and Urinary Tract Infection in Children.

    Experienced in Bardet-Biedl Syndrome
    Medical Genetics | Pediatrics
    Experienced in Bardet-Biedl Syndrome
    Medical Genetics | Pediatrics
    1204 W Main St, 
    Charlottesville, VA 
    Languages Spoken:
    English

    Jennifer Humberson is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Charlottesville, Virginia. Dr. Humberson is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Symphalangism Distal, Cornelia De Lange Syndrome, Sunken Fontanelles, and Hypotonia.

    Experienced in Bardet-Biedl Syndrome
    Dermatology
    Experienced in Bardet-Biedl Syndrome
    Dermatology
    3907 Bridge Rd # 200, 
    Suffolk, VA 
    Languages Spoken:
    English

    Robert Baer is a Dermatologist practicing medicine in Suffolk, Virginia. Dr. Baer is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 61 other conditions, according to our data. His clinical expertise encompasses Actinic Keratosis, Warts, Seborrheic Keratosis, and Psoriasis.

    Experienced in Bardet-Biedl Syndrome
    Medical Genetics | Pediatrics
    Experienced in Bardet-Biedl Syndrome
    Medical Genetics | Pediatrics
    1215 Lee St, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    William Wilson is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Charlottesville, Virginia. Dr. Wilson is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Pompe Disease, and Danon Disease.

    Experienced in Bardet-Biedl Syndrome
    Dermatology | Pediatrics
    Experienced in Bardet-Biedl Syndrome
    Dermatology | Pediatrics
    1221 Lee St, 
    Charlottesville, VA 
    Languages Spoken:
    English
    Offers Telehealth

    Barrett Zlotoff is a Dermatologist and a Pediatrics provider practicing medicine in Charlottesville, Virginia. Dr. Zlotoff is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Seborrheic Keratosis, Atopic Dermatitis, Pityriasis Rubra Pilaris, and Stork Bite.

    Experienced in Bardet-Biedl Syndrome
    Pediatrics | Medical Genetics
    Experienced in Bardet-Biedl Syndrome
    Pediatrics | Medical Genetics

    Carilion Medical Center

    4348 Electric Rd, 
    Roanoke, VA 
    Languages Spoken:
    English

    Emily Doherty is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Roanoke, Virginia. Dr. Doherty is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Hermansky-Pudlak Syndrome.

    Experienced in Bardet-Biedl Syndrome
    Family Medicine
    Experienced in Bardet-Biedl Syndrome
    Family Medicine

    Waverly Medical Center

    344 W Main St, 
    Waverly, VA 
    Languages Spoken:
    English
    Offers Telehealth

    George Coleman is a primary care provider, practicing in Family Medicine in Waverly, Virginia. Dr. Coleman is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Necrosis, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

    Experienced in Bardet-Biedl Syndrome
    Internal Medicine
    Experienced in Bardet-Biedl Syndrome
    Internal Medicine

    Universal Health Corporation

    130 Church Ave SW, 
    Roanoke, VA 
    Languages Spoken:
    English

    Alfonso Brochero is a primary care provider, practicing in Internal Medicine in Roanoke, Virginia. Dr. Brochero is rated as an Experienced provider by MediFind in the treatment of Bardet-Biedl Syndrome. He is also highly rated in 134 other conditions, according to our data. His clinical expertise encompasses Dementia, COVID-19, Multisystem Inflammatory Syndrome in Children (MIS-C), and Stroke.

    Showing 1-20 of 31

    Last Updated: 04/28/2026

    What is the definition of Bardet-Biedl Syndrome?

    Bardet-Biedl syndrome (BBS) is an inherited condition that affects many parts of the body. People with this syndrome have progressive visual impairment due to cone-rod dystrophy; extra fingers or toes (polydactyly); truncal obesity; decreased function of the male gonads (hypogonadism); kidney abnormalities; and learning difficulties. Genetic changes in many genes are known to cause Bardet-Biedl syndrome and inheritance is usually autosomal recessive.

    When should I see a Bardet-Biedl Syndrome doctor in Virginia, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Bardet-Biedl Syndrome doctor in Virginia, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Bardet-Biedl Syndrome doctors in Virginia, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Bardet-Biedl Syndrome doctors in Virginia, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Bardet-Biedl Syndrome doctor in Virginia, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Bardet-Biedl Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Bardet-Biedl Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Bardet-Biedl Syndrome doctor in Virginia, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Bardet-Biedl Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Bardet-Biedl Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Bardet-Biedl Syndrome doctors in Virginia, US?

    Look for the filter feature on the left side of the Bardet-Biedl Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Bardet-Biedl Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Bardet-Biedl Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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