Becker Muscular Dystrophy Clinical Trials

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An Open-Label, Systemic Gene Delivery Study Using Commercial Process Material to Evaluate the Safety of and Expression From SRP-9001 in Subjects With Duchenne Muscular Dystrophy (ENDEAVOR)

Who is this study for? Pediatric male patients over age 4 and adult male patients with Duchenne Muscular Dystrophy
What treatments are being studied? SRP-9001
Status: Recruiting
Location: See all (7) locations...
Intervention Type: Genetic
Study Type: Interventional
Study Phase: Phase 1
SUMMARY

This is an open-label gene transfer therapy study evaluating the safety of and expression from delandistrogene moxeparvovec in participants with DMD. The maximum participant duration for this study is 156 weeks.

Eligibility
Participation Requirements
Sex: Male
Minimum Age: 2
Healthy Volunteers: f
View:

• For Cohorts 1-8: Has a definitive diagnosis of DMD based on documented clinical findings and prior genetic testing.

• Cohort 1: Is ambulatory, and ≥4 to \<8 years of age at the time of Screening.

• Cohort 3: Non-ambulatory per protocol specified criteria at the time of Screening.

• Cohort 4: Is ambulatory and ≥3 to \<4 years of age at the time of Screening.

• Cohort 5a: Is ambulatory and ≥4 to \<9 years of age with time to rise from the floor ≤7 seconds at the screening visit.

• Cohort 5b: Non-ambulatory per protocol specified criteria at the time of Screening.

• Cohort 6: Is ambulatory, and ≥2 to \<3 years of age at the time of Screening.

• Cohort 7: Non-ambulatory per protocol-specified criteria at the time of Screening.

• Cohort 8: Non-ambulatory per protocol-specified criteria at the time of Screening, has a performance upper limb (PUL) entry item score ≥3 at the Screening visit and has a total PUL score of ≥20 and ≤40 at the time of Screening.

• Ability to cooperate with motor assessment testing.

• Cohorts 1, 2, 3, 5, 7 and 8 only: Stable dose equivalent of oral glucocorticoids for at least 12 weeks before screening and the dose is expected to remain constant (except for modifications to accommodate changes in weight) throughout the first year of the study.

• Cohorts 4 and 6: Do not yet require use of chronic steroids for treatment of their DMD, in the opinion of the Investigator, and are not receiving steroids at the time of Screening.

• rAAVrh74 antibody titers are not elevated as per protocol-specified requirements.

• Genetic mutation inclusion criteria vary by cohort.

Locations
United States
Arkansas
Arkansas Children's Hospital
RECRUITING
Little Rock
California
Stanford University
RECRUITING
Palo Alto
University of California, Davis
RECRUITING
Sacramento
Missouri
Washington University in St. Louis
RECRUITING
St Louis
Ohio
Nationwide Children's Hospital
ACTIVE_NOT_RECRUITING
Columbus
Texas
Neurology Rare Disease Center
RECRUITING
Flower Mound
Virginia
Children's Hospital of The King's Daughters
RECRUITING
Norfolk
Contact Information
Primary
Sarepta Therapeutics Inc., For Clinical Trial Information, Select Option 4
SareptAlly@Sarepta.com
1-888-SAREPTA (1-888-727-3782)
Time Frame
Start Date: 2020-11-23
Estimated Completion Date: 2028-02-29
Participants
Target number of participants: 83
Treatments
Experimental: Delandistrogene Moxeparvovec
Participants will receive a single intravenous (IV) infusion of delandistrogene moxeparvovec on Day 1.
Sponsors
Collaborators: Hoffmann-La Roche
Leads: Sarepta Therapeutics, Inc.

This content was sourced from clinicaltrials.gov