Biliary Atresia Research Network Northeast (BARNN)
This is a multi-center retrospective chart review to compile a data repository of the management and outcomes of children with biliary atresia. Overall, investigators aim to evaluate which specific factors contribute to improved patient outcomes, to help guide potential improvements in patient care and resource utilization.
• Children with a healthcare encounter related to biliary atresia at a participating institution during the study period (January 1st, 2012 through December 31st, 2021)
• Age 12 years and younger at the time of the qualifying encounter during the study period (encompassing patients born between January 2nd, 1999 through December 31st, 2021)
• Diagnosis of biliary atresia, based on one of the following ICD-10 codes:
‣ Q44.2 Atresia of bile ducts
⁃ Q44.3 Congenital stenosis and stricture of bile ducts
⁃ Q44.4 Disorders of the biliary tract with major complication or comorbidity
⁃ Q44.5 Other congenital malformations of the bile ducts
⁃ Q44.6 Disorders of the biliary tract without major complication or comorbidity