Relationship Between Breathing and Attention in Children With Ondine Syndrome

Status: Recruiting
Location: See location...
Intervention Type: Other
Study Type: Observational
SUMMARY

Congenital central hypoventilation syndrome (CCHS) is a rare disorder of autonomic and respiratory regulation that alters oxygen delivery to the brain. CCHS patients are at risk for broad neurocognitive deficits. Patients retain ventilatory activity when awake through a respiratory-related cortical network but the need to mobilise cortical resources to breathe lead to breathing-cognition interferences during cognitive tasks. The purpose of this study is to assess the relationship between breathing pattern and attention in CCHS children

Eligibility
Participation Requirements
Sex: All
Minimum Age: 6
Maximum Age: 16
Healthy Volunteers: f
View:

• children with CCHS (Ondine Syndrome) and IQ \> 70, age from 6 to 16 years old, french speaking, informed consent signed by both parents and oral agreement in principle given by the subject.

Locations
Other Locations
France
Robert Debre Hospital
RECRUITING
Paris
Contact Information
Primary
Christophe DELCLAUX, MD, PhD
christophe.delclaux@aphp.fr
+331 40 03 41 90
Backup
Benjamin DUDOIGNON, MD
benjamin.dudoignon@aphp.fr
+331 40 03 41 90
Time Frame
Start Date: 2024-02-29
Estimated Completion Date: 2026-09-01
Participants
Target number of participants: 20
Sponsors
Leads: Assistance Publique - Hôpitaux de Paris

This content was sourced from clinicaltrials.gov