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    Last Updated: 10/30/2025

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    MediFind found 6 doctor with experience in Congenital Central Hypoventilation Syndrome near Massachusetts, US. Of these, 5 are Experienced and 1 are Advanced.

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    6 providers found
      Advanced in Congenital Central Hypoventilation Syndrome
      Pediatrics | Pulmonary Medicine | Pediatric Pulmonology
      Advanced in Congenital Central Hypoventilation Syndrome
      Pediatrics | Pulmonary Medicine | Pediatric Pulmonology

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Umakanth Katwa is a Pediatrics specialist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Katwa is rated as an Advanced provider by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Central Sleep Apnea, Micrognathia, Congenital Central Hypoventilation Syndrome, Glossectomy, and Posterior Fossa Decompression. Dr. Katwa is currently accepting new patients.

      Experienced in Congenital Central Hypoventilation Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Sleep Medicine
      Experienced in Congenital Central Hypoventilation Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Sleep Medicine

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Thomas Kinane is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Kinane is rated as an Experienced provider by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Myhre Syndrome, Birt-Hogg-Dube Syndrome, Congenital Central Hypoventilation Syndrome, and Pneumonia. Dr. Kinane is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Congenital Central Hypoventilation Syndrome
      Pediatric Pulmonology | Pediatrics
      Experienced in Congenital Central Hypoventilation Syndrome
      Pediatric Pulmonology | Pediatrics
      Massachusetts General Hospital, 55 Fruit Street, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Lael Yonker is a Pediatric Pulmonologist and a Pediatrics provider in Boston, Massachusetts. Dr. Yonker is rated as an Experienced provider by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Cystic Fibrosis, Pseudomonas Stutzeri Infections, Pediatric Myocarditis, and Lung Transplant. Dr. Yonker is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Congenital Central Hypoventilation Syndrome
      Pediatric Pulmonology | Pulmonary Medicine
      Experienced in Congenital Central Hypoventilation Syndrome
      Pediatric Pulmonology | Pulmonary Medicine
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Po-yang Tsou is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Tsou is rated as an Experienced provider by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. His top areas of expertise are Central Sleep Apnea, Obstructive Sleep Apnea, Bronchitis, Congenital Central Hypoventilation Syndrome, and Adenoidectomy.

      Experienced in Congenital Central Hypoventilation Syndrome
      Sleep Medicine | Pulmonary Medicine | Pediatrics
      Experienced in Congenital Central Hypoventilation Syndrome
      Sleep Medicine | Pulmonary Medicine | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Seyni Gueye-Ndiaye is a Sleep Medicine specialist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Gueye-Ndiaye is rated as an Experienced provider by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Obstructive Sleep Apnea, Trisomy 17 Mosaicism, Periodic Limb Movement Disorder, Asthma, and Adenoidectomy. Dr. Gueye-Ndiaye is currently accepting new patients.

      Experienced in Congenital Central Hypoventilation Syndrome
      Pediatric Pulmonology | Pulmonary Medicine
      Experienced in Congenital Central Hypoventilation Syndrome
      Pediatric Pulmonology | Pulmonary Medicine
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Laura Chiel is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Chiel is rated as an Experienced provider by MediFind in the treatment of Congenital Central Hypoventilation Syndrome. Her top areas of expertise are Cerebral Hypoxia, Asthma, Asthma in Children, Congenital Unilateral Pulmonary Hypoplasia, and Lung Transplant. Dr. Chiel is currently accepting new patients.

      Showing 1-6 of 6

      Last Updated: 10/30/2025

      What is the definition of Congenital Central Hypoventilation Syndrome?

      Congenital central hypoventilation syndrome (CCHS) is a disorder that affects normal breathing. People with this disorder take shallow breaths (hypoventilate), especially during sleep, resulting in a shortage of oxygen and a buildup of carbon dioxide in the blood. Ordinarily, the part of the nervous system that controls involuntary body processes (autonomic nervous system) would react to such an imbalance by stimulating the individual to breathe more deeply or wake up. This nervous system reaction is impaired in people with CCHS. They must be supported with a machine to help them breathe (mechanical ventilation) or a device that stimulates a normal breathing pattern (diaphragm pacemaker). Some affected individuals need this support 24 hours a day, while others need it only at night.

      When should I see a Congenital Central Hypoventilation Syndrome doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Congenital Central Hypoventilation Syndrome doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Congenital Central Hypoventilation Syndrome doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Congenital Central Hypoventilation Syndrome doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Congenital Central Hypoventilation Syndrome doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Central Hypoventilation Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Congenital Central Hypoventilation Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Congenital Central Hypoventilation Syndrome doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Congenital Central Hypoventilation Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Congenital Central Hypoventilation Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Congenital Central Hypoventilation Syndrome doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Congenital Central Hypoventilation Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Congenital Central Hypoventilation Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Congenital Central Hypoventilation Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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