Swiss National Registry of Grown up Congenital Heart Disease (GUCH) Patients

Status: Recruiting
Location: See all (6) locations...
Study Type: Observational
SUMMARY

Due to successes in the last decades in pediatric heart surgery and cardiology, 90-95% of the children with congenital heart disease reach adult age.This results in an increasing number of adults or grown-ups with congenital heart disease (ACHD or GUCH patients) that require special health care organization and training programmes. Long term complications of these GUCH patients and optimum treatment strategies are still poorly known. The aim of this registry is to collect quantitative and qualitative data regarding GUCH patients treated in specialised centres in Switzerland.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:

• Adult (above 18 years of age) with congenital heart disease, treated in one of the Swiss centre with specialized organisation for GUCH patients.

• Signed informed consent. Patients with trisomy 21: the parents or legal guardian will have to give the consent.

Locations
Other Locations
Switzerland
Basel University Hospital
RECRUITING
Basel
Bern University Hospital Inselspital
RECRUITING
Bern
Hôpitaux Universitaires de Genève HUG
RECRUITING
Geneva
Centre Hospitalier Universitaire Vaudois CHUV
RECRUITING
Lausanne
Kantonsspital St.Gallen
RECRUITING
Sankt Gallen
University Hospital Zurich
RECRUITING
Zurich
Contact Information
Primary
Daniel Tobler, MD
daniel.tobler@usb.ch
+41 61 265 52 14
Time Frame
Start Date: 2013-09
Estimated Completion Date: 2033-12
Participants
Target number of participants: 5000
Related Therapeutic Areas
Sponsors
Leads: University Hospital, Basel, Switzerland

This content was sourced from clinicaltrials.gov