The Effect of Structured Transition Care Model Applied to Adolescents With Congenital Heart Disease on Transition Readiness, Self-Management Skills and Care Satisfaction

Status: Recruiting
Location: See all (2) locations...
Intervention Type: Behavioral
Study Type: Interventional
Study Phase: Not Applicable
SUMMARY

Congenital heart disease is one of the most common congenital defects with a high mortality and morbidity rate. Children with congenital heart disease step from pediatric care to adult care during adolescence. This situation has brought up transitional care, which is defined as the purposeful and planned movement of adolescents and young adults with chronic physical and medical conditions from pediatric to adult-oriented health systems. Since adolescents with congenital heart disease are at high risk for complications in adulthood, it is very important to raise awareness, increase the level of readiness for adult care and gain self-management skills during the transition phase. This study was planned as a randomized controlled experimental study to evaluate the effect of the developmental transition care model applied to adolescents with congenital heart disease during the transition from pediatric care to adult care on the transition readiness level, self-management skills and care satisfaction of adolescents. Studies have shown that both adolescents with congenital heart disease and their caregivers need professional support, appropriate transition education and care before transition to adult care in order to increase adaptation to adult care, to gain self-management skills and to reduce their concerns. Studies in which adolescents are followed up after transition to adult care show that when the transition process is not successfully completed, there is excessive time between the last pediatric control and the first adult control or there are losses in further follow-up. Although there are studies in our country in which transition care is applied, this study is planned because there is no intervention study in which developmental transition care model is applied to adolescents with congenital heart disease. It is thought that this study will increase the transition readiness levels, self-management skills and care satisfaction of adolescents with congenital heart disease and guide the nurses working with them.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 16
Maximum Age: 20
Healthy Volunteers: f
View:

• Voluntarily agree to participate in the research

• To be between the ages of 16-20,

• Having a diagnosis of congenital heart disease,

• Being followed up with a diagnosis of congenital heart disease for at least one year in the polyclinics where the study was conducted,

• To be able to communicate in Turkish,

• Not having any mental deficiency that may prevent communication

Locations
Other Locations
Turkey
Republic of Turkey Ministry of Health Ankara Etlik City Hospital
RECRUITING
Ankara
Republic of Turkey Ministry of Health Ankara Etlik City Hospital
NOT_YET_RECRUITING
Ankara
Contact Information
Primary
Tutku KIRÇI TEMİZ, PhD s.
tutkukrc29095@gmail.com
+905064278982
Backup
Utku ARMAN ÖRÜN, Prof.Dr.
utkuarman.orun@sbu.edu.tr
+905322933072
Time Frame
Start Date: 2024-08-29
Estimated Completion Date: 2025-03-30
Participants
Target number of participants: 70
Treatments
Experimental: Transition care group
The transitional care group is a group that will receive a transitional care training consisting of a total of 3 modules in which the content is arranged for individualized needs with expert opinion from 10 faculty members working in the field of Child Health and Diseases Nursing.The education sessions will be conducted every months in sessions of approximately 35-40 minutes face-to-face in the training room allocated to the individual researcher.
No_intervention: Control group
The control group is the group receiving routine care that continues the normal follow-up of the clinic without any intervention. However, in terms of compliance with ethical principles, the same training will be given to them upon their request after the research is completely completed.
Related Therapeutic Areas
Sponsors
Leads: Ankara Yildirim Beyazıt University

This content was sourced from clinicaltrials.gov