Utilizing Palliative Leaders In Facilities to Transform Care for Alzheimer's Disease

Status: Recruiting
Location: See location...
Intervention Type: Behavioral
Study Type: Interventional
Study Phase: Not Applicable
SUMMARY

The purpose of this study is to evaluate a comprehensive model for integrating both primary and specialty Palliative Care for older adults with dementia into nursing facilities. Palliative Care is a supportive care approach that aims to improve the quality of life of patients and their families facing serious or life-threatening illnesses, through the prevention and relief of suffering through the treatment of pain and other problems, using physical, psychosocial and spiritual approaches. Palliative care is specialized medical care for people who are living with a serious illness. This type of care is focused on providing relief from the symptoms and from the stress of the illness. The goal is to improve quality of life for both patient and family. The UPLIFT-AD model will include providing education on primary Palliative Care for residents with dementia to nursing facility staff, training nursing facility staff in providing primary Palliative Care, and providing access to specialty Palliative Care consultations for residents. To help understand the impact of these interventions, this study will also collect information about resident health, the care they receive, and perceptions of their quality of life according to both family members and nursing facility staff.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:

⁃ \-

⁃ NURSING HOME RESIDENTS:

• Long-stay resident in an enrolled nursing home defined as not paying through Medicare Part A at the enrolled facility.

• Has a diagnosis of moderate to severe ADRD, as measured on the Minimum Data Set (MDS)

• Length of stay \>30 days

⁃ FAMILY MEMBERS/SURROGATE DECISION MAKERS:

• Family member and/or surrogate decision maker for an eligible resident in an enrolled nursing home

• English-speaking

⁃ NURSING HOME STAFF:

• Staff, nurse, or nurse assistant in an enrolled nursing facility

• English-speaking

Locations
United States
Indiana
American Senior Communities
RECRUITING
Indianapolis
Contact Information
Primary
Alex Floyd
acfloyd@regenstrief.org
(317) 274-9164
Time Frame
Start Date: 2021-09-08
Estimated Completion Date: 2025-09
Participants
Target number of participants: 2000
Treatments
Experimental: Nursing Home-level UPLIFT-AD intervention
The UPLIFT-AD intervention consists of three major components delivered at the level of the nursing home: 1) in-house PC champions trained to a) facilitate advance care planning conversations with residents with Alzheimer's Disease and Related Dementias and their surrogate decision-makers, b) screen and follow up on residents' Palliative Care needs and c) serve as a liaison to Palliative Care consultants; 2) specialty Palliative Care consultant support providing individual consults for residents with complex Palliative Care needs; and 3) education on primary Palliative Care offered to all clinical NH staff.
No_intervention: Usual Care
Usual nursing home care.
Related Therapeutic Areas
Sponsors
Collaborators: University of Maryland, Baltimore, National Institute on Aging (NIA)
Leads: Indiana University

This content was sourced from clinicaltrials.gov