Care Planning for a Loved One With Dementia: Knowledge, Preparing for Decisions, and Emotions
Status: Recruiting
Location: See location...
Intervention Type: Other
Study Type: Interventional
Study Phase: Not Applicable
SUMMARY
The overall objective of this study is to compare knowledge, decisional conflict, preferences, and caregiver burden over time caregivers of Alzheimer's Disease and Related Dementias (ADRD) patients by comparing the effectiveness of a video decision aid intervention and enhanced usual care.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: t
View:
• All participants must be age 18 or older.
• Participants must be able to speak and understand English.
• Participants must be a caregiver of someone with Alzheimer's Disease, frontotemporal dementia, or a related dementia
• Participants should be able to understand the purpose and risks of the study and provide signed and dated informed consent and authorization to use protected health information (PHI) in accordance with national and local participant privacy regulations.
Locations
United States
Massachusetts
Massachusetts General Hospital
RECRUITING
Boston
Contact Information
Primary
Amy Marchesano, LMCH
AMARCHESANO@mgh.harvard.edu
617-726-4587
Backup
Katie Brandt, MM
katherine.brandt@mgh.harvard.edu
6176432323
Time Frame
Start Date:2022-04-13
Estimated Completion Date:2024-05-31
Participants
Target number of participants:150
Treatments
Experimental: Video Intervention Arm
For participants randomized to the video intervention arm, participants will be shown two videos about Advanced Care Planning, and then they will be asked questions regarding the usefulness of the video and their comfort with the video
No_intervention: Control Arm
For participants randomized to the control group arm, participants will review an informational sheet, which covers the same information as the videos shown to the intervention arm.