Family Interventions iN Dementia Mental Health Environments

Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY

Study Goal: Understand carers' needs when someone with dementia is in a mental health ward and develop strategies to support carers as partners in care. Research Questions: * What are mental health wards like in terms of staff, patients, and current carer support? * What do carers experience and need during admission, discharge, and beyond? * How do ward routines and staff practices affect carer involvement? * How can co-design turn research into practical strategies for carer support? * Can these strategies be implemented effectively? Method: The investigators will survey mental health wards nationwide, interview carers from three UK wards, observe ward practices, and talk to staff. They will use this information to create and share practical strategies to improve carer support across the UK.

Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: t
View:

• Ward managers of mental health wards that provides care to PLWD

• Ward managers from NHS wards that provides care to PLWD

• Ward managers from private providers that provides care to PLWD

• Ward managers that work on organic or mixed wards that provides care to PLWD

• Family member (any relationship) or friend of a PLWD currently receiving care on a mental health ward

• Aged 18 years old or above

• Has capacity to consent to participate in an interview

• Willing to take part in 3 interviews over 12 months

• Family member (any relationship) or friend of a PLWD discharged from the ward within the last 3 years

• Aged 18 years old or above

• Has capacity to consent to participate in an interview

• Willing to take part in an interview

• PLWD currently under the care of the mental health ward

• PLWD discharged from the care of a dementia mental health ward within the last 3 years

• Has capacity to give informed consent to taking part in an interview

• Willing to take part in an interview alongside their carer

• PLWD who may, or may not, have experience of dementia mental health wards

• Carers (family members or friends) of PLWD who may, or may not, have experience of dementia mental health wards

• Willing to talk about mental health and dementia

• Aged 18 years old or above

• Have capacity to give informed consent

• Members of staff working within mental health wards for PLWD

• Members of staff of any professional group in a role that involves contact with carers (e.g. health care assistants, nurses, occupational therapists, psychologists, physiotherapists, speech and language therapists, family therapists, psychiatrists etc)

• Members of staff of any pay band or grade

• Students on placement in a mental health ward

• Members of staff working on NHS or private wards

• PLWD

• Carer (family or friend; current or bereaved)

• Willing to review outputs related to mental health wards

• Aged 18 years old or above

• Capacity to consent to take part

• Members of staff working within mental health wards for PLWD

• Members of staff of any professional group in a role that involves contact with carers (e.g. health care assistants, nurses, occupational therapists, psychologists, physiotherapists, speech and language therapists, family therapists, psychiatrists etc)

• Members of staff of any pay band or grade

• Students on placement in a mental health ward

• Members of staff working on NHS or private wards

Locations
Other Locations
United Kingdom
Geller Institute of Aging and Memory, University of West London
RECRUITING
London
Contact Information
Primary
Prof Emma Wolverson, DClinPsy
emma.wolverson@uwl.ac.uk
02082094277
Time Frame
Start Date: 2025-05-29
Estimated Completion Date: 2027-05-31
Participants
Target number of participants: 343
Treatments
Ward managers of dementia mental health wards
Ward managers of mental health wards that provide specialist care to patients with dementia will be invited to participate in a UK-wide, national mapping survey. One ward manager per ward is required to complete survey. Ward managers from NHS trusts and private providers will be invited to participate. There are approximately 90 NHS wards and 20 private providers in the UK (e.g. Cygnet Health Care, the Priory Group, Elysium Health Care, and St Andrew's Healthcare). Target recruitment goal of survey completion is 50% = 55 ward managers in total.
Co-design study participants
Co-design workshops will be conducted with people living with dementia (n=10) and carers (n=10), and staff (n=10) working on mental health wards, to translate the findings into evidence-based strategies and collaboratively shape service improvements to address user needs and enhance care.
Feasibility study participants
People living with dementia (n=30), carers (n=30) and staff (n=30) will be recruited to test the feasibility of resources and interventions, co-designed to improve carer support, involvement and staff training.
Family carers
Interviews will be conducted with family carers whose friend/relative has received care on a dementia mental health ward (recruitment will take place across 3 wards). The investigators will interview current carers (8 per ward, total = 24) at 3 time points over 1 year. They will be carers of patients with dementia currently receiving care on a mental health ward. The investigators will also interview carers whose friend/relative has been discharged from a mental health ward within the last 3 years (8 per ward, total = 24).~People with dementia receiving care on mental health wards are usually in the advanced stages of dementia and very distressed. However, there may be some who have the capacity to consent and if they wish, will be supported in taking part in dyadic interviews with their carer.
Health care professionals working on a dementia mental health ward
Ethnographic observations will be conducted of staff working on dementia mental health wards. These will be focused on how staff interact with, support and involve family carers in the decisions of the care of their friend/relative with dementia receiving care on the ward.~In-situ ethnographic interviews (5-10 mins reciprocal conversations) with ward staff will take place during observations to explore what staff draw on to inform their interactions and support with carers, how they recognise carers needs and what informal and embedded rationales used in decision making inform their involvement with carers.~Staff to take part in longer (30-60 min) interviews (5 per site, total = 15) will be identified in collaboration with ward managers. The sample will include staff from a range of disciplines and roles.
Related Therapeutic Areas
Sponsors
Leads: University of West London
Collaborators: University of Cambridge, University of Exeter

This content was sourced from clinicaltrials.gov