ENGAGE-D: Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia
This study will test a care management intervention to guide end-of-life care and hospice transitions for persons with dementia and their care partners receiving home healthcare and ascertain feasibility, acceptability, fidelity, and usability of a dementia care management hospice transitions checklist. This study will also examine hospice enrollment, time to enrollment, and care partner satisfaction with the intervention. The intervention will be delivered within usual care management within a large home healthcare agency.
⁃ Care Partners and PLWD Dyad:
• Care partners of PLWD who have a diagnosis of moderate to severe dementia.
• Able to provide informed consent
⁃ HHC Professionals:
⁃ Care Managers and Field Nurses:
• Care managers who regularly engage hospice transitions with care partners of PLWD
• Age 18 or older
⁃ Medical Providers:
• Medical providers (e.g., physicians and nurse practitioners) who refer patients for hospice enrollment.
• Age 18 or older
⁃ HHC Administrators:
• Home healthcare administrators who work with the Certified Home Health Agency or the Advanced Illness Management Program that refers patients to hospice care
• Age 18 or older