Children, Adolescents and Their Providers: the Narcolepsy Assessment Partnership (CATNAPTM)

Status: Recruiting
Location: See all (25) locations...
Study Type: Observational
SUMMARY

CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.

Eligibility
Participation Requirements
Sex: All
Maximum Age: 17
Healthy Volunteers: f
View:

• Any child or adolescent with a physician-confirmed diagnosis of narcolepsy

• Age less than 18 years

• Willing to participate in the Registry and complete the informed consent form

• Able to participate in English based registry

Locations
United States
Arkansas
University of Arkansas
NOT_YET_RECRUITING
Fayetteville
Arkansas Children's Research Institute
RECRUITING
Little Rock
Arizona
Phoenix Children's Hospital
NOT_YET_RECRUITING
Phoenix
University of Arizona
RECRUITING
Tucson
California
Stanford University
RECRUITING
Redwood City
University of California San Diego
RECRUITING
San Diego
Washington, D.c.
Children's National Medical Center
NOT_YET_RECRUITING
Washington D.c.
Children's Research Institute
NOT_YET_RECRUITING
Washington D.c.
Florida
University of South Florida
RECRUITING
Tampa
Illinois
Lurie Children's Hospital of Chicago
NOT_YET_RECRUITING
Chicago
Massachusetts
Boston Children's Hospital
RECRUITING
Boston
Maryland
Johns Hopkins University
NOT_YET_RECRUITING
Baltimore
Michigan
Trinity Health-Michigan
NOT_YET_RECRUITING
Grand Rapids
Mayo Clinic
NOT_YET_RECRUITING
Rochester
Missouri
St. Luke's Hospital
RECRUITING
Chesterfield
Children's Mercy Hospital
RECRUITING
Kansas City
New York
Northwell Health
RECRUITING
Manhasset
Ohio
Cincinnati Children's Hospital Medical Center
RECRUITING
Cincinnati
University Hospitals Cleveland Medical Centre (UHCMC)
RECRUITING
Cleveland
Nationwide Children's Hospital
NOT_YET_RECRUITING
Columbus
Ohio Sleep Medicine Institute
RECRUITING
Dublin
Pennsylvania
Geisinger
RECRUITING
Danville
Children's Hospital of Philadelphia
RECRUITING
Philadelphia
Texas
Texas Children's Hospital (Baylor College of Medicine)
RECRUITING
Houston
Virginia
Children's Hospital of the King's Daughters
RECRUITING
Norfolk
Contact Information
Primary
Director Clinical Trial Disclosure & Transparency
ClinicalTrialDisclosure@JazzPharma.com
2158709177
Time Frame
Start Date: 2020-10-10
Estimated Completion Date: 2024-10-01
Participants
Target number of participants: 500
Related Therapeutic Areas
Sponsors
Leads: Jazz Pharmaceuticals

This content was sourced from clinicaltrials.gov