A Phase 1/2 Open-label Dose-escalation Study to Evaluate the Safety, Tolerability, and Biological Activity of EPI-321, an AAVrh74-delivered Epigenetic Editing Therapy in Adult FSHD Patients

Status: Recruiting
Location: See all (6) locations...
Intervention Type: Biological
Study Type: Interventional
Study Phase: Phase 1/Phase 2
SUMMARY

The goal of this clinical trial is to learn how safe and tolerable EPI-321 is and whether there may be early signs it is working in male or female adult (18 to 75 years) participants with facioscapulohumeral muscular dystrophy (FSHD) Type 1 condition. The main questions it aims to answer are: How safe is EPI-321 and how well can people handle it over time? How does EPI-321 interact with its target and does it show early signs of working? Participants will receive a single dose of EPI-321 through a vein while being closely watched in a hospital and visit the clinic regularly for tests and checkups for about 5 years after getting EPI-321.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Maximum Age: 75
Healthy Volunteers: f
View:

• Able and willing to provide informed consent

• Male or female 18 to 75 years of age

• Clinical diagnosis of FSHD with genetic Type 1

• FSHD Ricci clinical severity score 2 to 4 (on 5-point scale)

• Has adequate liver function

• Has adequate kidney function

Locations
United States
California
David Geffen School of Medicine at University of California, Los Angeles
RECRUITING
Los Angeles
Georgia
Rare Disease Research
RECRUITING
Atlanta
Massachusetts
University of Massachusetts Chan Medical School
RECRUITING
Worcester
Utah
Utah Program for Inherited Neuromuscular Disorders - University of Utah
RECRUITING
Salt Lake City
Other Locations
Australia
Royal Alfred Hospital
NOT_YET_RECRUITING
Sydney
New Zealand
Pacific Clinical Research Network
RECRUITING
Auckland
Contact Information
Primary
Weston Miller, M.D.
epic.clinicaltrial@epic-bio.com
888-562-4123
Time Frame
Start Date: 2025-05-08
Estimated Completion Date: 2032-04-30
Participants
Target number of participants: 12
Treatments
Experimental: EPI-321 Cohort 1 Single IV Dose
Single IV infusion of a target dose of 2x10\^13 vg/kg
Experimental: EPI-321 Cohort 2 Single IV Dose
Single IV infusion of a target dose of 4x10\^13 vg/kg
Sponsors
Leads: Epicrispr Biotechnologies, Inc.

This content was sourced from clinicaltrials.gov