International Wilson's Disease Patient Registry (iWilson Registry)
Longitudinal, observational, non-interventional, standard of care Registry. Data will be collected from the routinely scheduled WD clinic visits at approximately 6-12 month intervals. At enrolment, in addition to data from the clinic visit, retrospective data will be collected from the diagnostic evaluation and any relevant past medical history and a summary of WD medication history.
• Patient is able to provide, and has provided, written informed consent/assent
• Written documentation has been obtained in accordance with the relevant country and local privacy requirements, where applicable, including:
‣ For US sites: Authorization for Use and Release of Health Research Study Information
⁃ For EU sites: Data Protection Consent
• All patients diagnosed with WD including pre-symptomatic individuals and individuals with co-morbidities/diagnoses
• Any treatments including prescribed and homeopathic/traditional therapies or naive patients on no therapy