Prospective, Longitudinal, Observational Registry of Adult Patients with Hypophosphatasia
Status: Recruiting
Location: See all (10) locations...
Intervention Type: Other
Study Type: Observational
SUMMARY
The purpose of this study is to assess medical events during follow-up of adult patients having hypophosphatasia and consulting rheumatologists.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:
• men and women,
• aged 18 and over, with no upper age limit, who have had a total alkaline phosphatase value of less than 40 IU/l on at least 3 occasions,
• with at least one rheumatological symptom.
Locations
Other Locations
France
CHU Lille
NOT_YET_RECRUITING
Lille
Hospices Civils de Lyon
NOT_YET_RECRUITING
Lyon
CHU Nice
RECRUITING
Nice
Cochin Hospital
RECRUITING
Paris
Lariboisière Hospital
NOT_YET_RECRUITING
Paris
CHU Poitiers
RECRUITING
Poitiers
CHU Rennes
RECRUITING
Rennes
CHU Saint-Etienne
NOT_YET_RECRUITING
Saint-priest-en-jarez
Les hôpitaux universitaires de Strasbourg
NOT_YET_RECRUITING
Strasbourg
CHU de Toulouse
NOT_YET_RECRUITING
Toulouse
Contact Information
Primary
Christian ROUX, MD, PhD
christian.roux@aphp.fr
0158412579
Backup
Guillaume MASSON, MSc
guillaume.masson@aphp.fr
0158413478
Time Frame
Start Date: 2023-03-22
Estimated Completion Date: 2031-03
Participants
Target number of participants: 100
Related Therapeutic Areas
Sponsors
Leads: Assistance Publique - Hôpitaux de Paris