INSIGHTS Registry - Inspiring New Science In Guiding Healthcare in Turner Syndrome
Status: Recruiting
Location: See all (10) locations...
Intervention Type: Other
Study Type: Observational
SUMMARY
INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.
Eligibility
Participation Requirements
Sex: Female
Healthy Volunteers: f
View:
• Individuals with TS and TS variants as defined by the TS Clinical Practice Guideline definition (karyotype consistent with TS, phenotypic female, clinical feature(s) of TS)
• Informed consent/assent as appropriate
Locations
United States
Colorado
Children's Hospital Colorado
RECRUITING
Aurora
Washington, D.c.
Children's National
RECRUITING
Washington D.c.
Illinois
Lurie Children's
RECRUITING
Glenview
Kansas
University of Kansas
RECRUITING
Lawrence
North Carolina
UNC Hospitals Children's Specialty Clinic
RECRUITING
Chapel Hill
Ohio
Cincinnati Children's Hospital Medical Center
RECRUITING
Cincinnati
Nationwide Childern's Hospital
RECRUITING
Columbus
Pennsylvania
Children's Hospital of Philadelphia
RECRUITING
Philadelphia
Texas
The University of Texas Health Science Center at Houston
RECRUITING
Houston
Washington
Seattle Children's
RECRUITING
Seattle
Contact Information
Primary
Shanlee M Davis, MD, PhD
shanlee.davis@childrenscolorado.org
720-777-6073
Time Frame
Start Date: 2020-05-20
Estimated Completion Date: 2025-10
Participants
Target number of participants: 5000
Related Therapeutic Areas
Sponsors
Leads: University of Colorado, Denver