Multi-Stakeholder Engagement for Interdisciplinary Telehealth in Lewy Body Dementia

Status: Recruiting
Location: See location...
Intervention Type: Behavioral
Study Type: Interventional
Study Phase: Not Applicable
SUMMARY

Lewy body dementia (LBD) is the 2nd most common neurodegenerative dementia in the US. Optimal care requires an interdisciplinary approach, however often faced barriers include rural residence, limited access to specialists, travel distance, limited awareness of resources, and physical, cognitive, and behavioral impairments making travel to appointments challenging. Delivering interdisciplinary care remotely using video technology has the potential to improve access to care for patients with LBD.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Maximum Age: 100
Healthy Volunteers: t
View:

• LBD diagnosis by a dementia or movement disorders specialist

• Clinician-determined mild-moderate dementia severity

• Internet access with a Zoom-compatible device

• Caregiver who resides in the patient's home and is willing to participate

• Fluency in English

Locations
United States
Florida
University of Florida
RECRUITING
Gainesville
Contact Information
Primary
Bhavana Patel, DO
bhavana.patel@neurology.ufl.edu
352-733-2419
Backup
Noheli Bedenfield, MHA
noheli.bedenfield@neurology.ufl.edu
352-733-2419
Time Frame
Start Date: 2022-02-28
Estimated Completion Date: 2026-05-31
Participants
Target number of participants: 106
Treatments
Experimental: Tele-neurohub
This group will receive the tele-neurohub intervention which includes telemedicine appointments with the neurologist, speech therapist, social worker, and nutritionist at baseline, 3 months and 6 months, and PT and OT every 2 weeks for maintenance neuro-rehabilitation.
Active_comparator: Usual care group
Receive usual care but will have study visit assessments at baseline and 6 months.
Sponsors
Leads: University of Florida
Collaborators: National Institute on Aging (NIA)

This content was sourced from clinicaltrials.gov