National Lymphangioleiomyomatosis Registry, France
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and information concerning the timing and modalities of diagnosis. Based on the registry, we will set up a prospective cohort of patients. The database will include detailed medical information, particularly regarding progression of the respiratory function.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:
• Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous sclerosis.
• patients diagnosed or hospitalized or seen in consultation since 01/01/2008
Locations
Other Locations
France
Hôpital Louis Pradel
RECRUITING
Lyon
Contact Information
Primary
Vincent Cottin, MD
33-427-857-700
Backup
Raphaële Guelminger, CRA
33-472-357-074
Time Frame
Start Date: 2012-01
Estimated Completion Date: 2026-12
Participants
Target number of participants: 200
Related Therapeutic Areas
Sponsors
Leads: Vincent COTTIN
Collaborators: Hospices Civils de Lyon