A National Registry on Clinical Manifestations, Genetics, Interventions, and Outcomes in Chinese Patients With Lymphangioleiomyomatosis (LAM-CHINA)
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
Pulmonary lymphangioleiomyomatosis (LAM), a disease characterized by diffuse cystic changes in the lung, is a rare disorder that affects almost exclusively women. The main objectives of this study are to accurately evaluate the prevalence of LAM, the status of disease, the diagnosis and treatment, the quality of care, and the health related outcomes in China.
Eligibility
Participation Requirements
Sex: Female
Healthy Volunteers: f
View:
• Gender: female.
• Age: no limitation.
• Diagnosis meets one of the following criteria, (1) definite or probable diagnosis of LAM based on ATS/JRS and ERS criteria. (2) Investigators recommend including of the patient.
Locations
Other Locations
China
Peking Union Medical College Hospital
RECRUITING
Beijing
Contact Information
Primary
Kai-Feng Xu, M.D.
xukf@pumch.cn
86-10-69155039
Time Frame
Start Date: 2017-01-01
Estimated Completion Date: 2026-10-01
Participants
Target number of participants: 1500
Related Therapeutic Areas
Sponsors
Collaborators: The Affiliated Nanjing Drum Tower Hospital of Nanjing University Medical School, Fujian Provincial Hospital, Anhui Provincial Hospital, Central South University, Beijing Shijitan Hospital, Capital Medical University, West China Hospital, Wuxi People's Hospital, Guangzhou Institute of Respiratory Disease, Wuhan TongJi Hospital, Shanghai Zhongshan Hospital, Xiangya Hospital of Central South University
Leads: Peking Union Medical College Hospital