Promoting Self-Management in Head and Neck Cancer Survivors With Lymphedema and Fibrosis [PROMISE Trial]
The goal of this study is to evaluate the effectiveness of a standardized lymphedema and fibrosis self-management program (LEF-SMP) to improve LEF self-management and reduce LEF-associated symptom burden, functional deficits, and improve quality of life in head and neck cancer (HNC) survivors.
• \>18 years of age
• Post HNC primary treatment
• No evidence of cancer (NED)
• Completion of initial lymphedema therapy for head and neck lymphedema
• Unable to obtain lymphedema therapy due to barriers noted above
• History of lymphedema on the face and neck, with or without fibrosis
• Ability to understand English in order to complete questionnaires
• Ability to perform self-care activities for LEF management
• Ability to provide informed consent
• Having an electronic device (a computer, tablet, iPad, or smartphone) and internet access at home
• A valid email address