Post-Authorization Safety Study for Assessment of Pregnancy and Infant Outcomes in Patients Treated With Kesimpta (Ofatumumab) Using OTIS Observational Pregnancy Surveillance Program and DMSKW Registry

Status: Recruiting
Location: See location...
Intervention Type: Other
Study Type: Observational
SUMMARY

The Kesimpta Pregnancy Registry is an observational, exposure cohort designed study to examine pregnancy and infant outcomes in women and infants who are exposed to Kesimpta (ofatumumab) during pregnancy to treat MS.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Maximum Age: 100
Healthy Volunteers: t
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⁃ Participants must meet all the criteria listed under the respective cohorts to enroll in that particular cohort of the registry:

⁃ Cohort 1: Kesimpta-Exposed Cohort

• Pregnant women

• Diagnosed with MS, with the indication validated by medical records when possible

• Administered Kesimpta for the treatment of MS at any time from 166 days prior to the first day of the LMP, or up to and including the end of pregnancy

• Agree to the conditions and requirements of the study including the interview schedule, release of medical records, the dysmorphology examination of live born infants (OTIS specific), and validated developmental performance questionnaire in live born children

⁃ Cohort 2: Disease-Matched Comparison Cohort (Comparison Group 1)

• Pregnant women

• Diagnosed with MS, with the indication validated by medical records when possible

• May or may not have taken another medication for MS in the current pregnancy

• Agree to the conditions and requirements of the study including the interview schedule, release of medical records, the dysmorphology examination of live born infants (OTIS specific), and validated developmental performance questionnaire in live born children

⁃ Cohort 3: Healthy Comparison Cohort (Comparison Group 2):Kesimpta-OTIS sub-study specific

• Pregnant women

• Agree to the conditions and requirements of the study including the interview schedule, release of medical records, the dysmorphology examination of live born infants, and validated developmental performance questionnaire in live born children

Locations
United States
California
University of California San Diego OTIS
RECRUITING
La Jolla
Contact Information
Primary
Novartis Pharmaceuticals
novartis.email@novartis.com
1-888-669-6682
Backup
Novartis Pharmaceuticals
mothertobaby@health.ucsd.edu
+41613241111
Time Frame
Start Date: 2023-01-05
Estimated Completion Date: 2033-02-28
Participants
Target number of participants: 725
Treatments
Disease-matched cohort (Comparison Group 1)
comparison group consisting of women diagnosed with MS who have not used Kesimpta during pregnancy (unexposed disease-matched comparison group).
Healthy cohort (only applicable in the Kesimpta-OTIS sub-study) (Comparison Group 2)
healthy women who are not diagnosed with MS or any other autoimmune disease, have not had exposure to a known human teratogen, and have not taken Kesimpta in pregnancy (healthy comparison group). Since the DMSKW register is an MS population specific register that does not collect data on non-MS population, this cohort is only applicable in the Kesimpta-OTIS sub-study.
Kesimpta-exposed cohort
women and infants who are exposed to Kesimpta during pregnancy to treat MS.
Related Therapeutic Areas
Sponsors
Leads: Novartis Pharmaceuticals

This content was sourced from clinicaltrials.gov