Myasthenia Gravis Clinical Trials

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AXIS Autoimmune Neurology Registry

Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY

The goal of the AXIS Autoimmune Neurology Registry is to learn about the experiences of adults living with autoimmune neurological disorders, starting with myasthenia gravis (MG), over time. The main questions the registry aims to answer are: * How do symptoms, daily functioning, and quality of life change over time? * What treatments do participants use, and how are these treatments related to their symptoms and health? * What challenges do participants experience with treatment, including side effects, treatment burden, missed doses, and access to care? Participants will: * Join the registry and complete an enrollment survey (online or through a mobile app) * Complete a brief online survey about their MG approximately once a month * Provide information that can help confirm their MG diagnosis * Optionally, share their medical records with the research team This is an observational study. The registry will not assign treatments or ask participants to change their medical care. Information collected through the registry may help researchers better understand MG and improve future research and care.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Healthy Volunteers: f
View:

• Physician-confirmed diagnosis of myasthenia gravis (MG)

• Willing and legally able to provide consent

• Lives in the United States

Locations
United States
Massachusetts
Alira Health - Virtual/Remote Site - Can Be Completed 100% Online - All US Residents Accepted
RECRUITING
Framingham
Contact Information
Primary
AXIS Patient Registry Team
support@axispatientregistry.com
765-632-2517
Backup
President, Board of Directors, Autoimmune Neurology Alliance
info@ainalliance.org
Time Frame
Start Date: 2026-03-19
Estimated Completion Date: 2036-03
Participants
Target number of participants: 1000
Treatments
Myasthenia Gravis (MG)
Adults with confirmed diagnosis of MG
Sponsors
Leads: Autoimmune Neurology Alliance
Collaborators: Alira Health

This content was sourced from clinicaltrials.gov