Myotonic Dystrophy Family Registry
Status: Recruiting
Location: See location...
Intervention Type: Other
Study Type: Observational
SUMMARY
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed by clinical exam or genetic test)
Locations
United States
California
Myotonic Dystrophy Foundation
RECRUITING
Oakland
Contact Information
Primary
Sofia Olmos, PhD
coordinator@myotonicregistry.org
415-800-7777
Time Frame
Start Date: 2013-02
Estimated Completion Date: 2030-02
Participants
Target number of participants: 3500
Related Therapeutic Areas
Sponsors
Leads: Myotonic Dystrophy Foundation