The 20 Best Nemaline Myopathy Doctors in Germany

Find the Top Nemaline Myopathy Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 59 doctor with experience in Nemaline Myopathy near Germany. Of these, 53 are Experienced, 5 are Advanced and 1 are Distinguished.

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59 providers found
    Distinguished in Nemaline Myopathy

    Werner P. Stenzel
    Distinguished in Nemaline Myopathy

    Werner P. Stenzel
    Referral may be required

    Charité Universitätsmedizin

    Berlin, BE, DE 

    Werner Stenzel practices practicing medicine in Berlin, Germany. Mr. Stenzel is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Myositis, Antisynthetase Syndrome, Polymyositis, and Dermatomyositis.

    Advanced in Nemaline Myopathy

    Hans H. Goebel
    Advanced in Nemaline Myopathy

    Hans H. Goebel
    Referral may be required

    Charité Universitätsmedizin

    Berlin, BE, DE 

    Hans Goebel practices practicing medicine in Berlin, Germany. Mr. Goebel is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Centronuclear Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Advanced in Nemaline Myopathy

    Maja Von Der Hagen
    Advanced in Nemaline Myopathy

    Maja Von Der Hagen
    Referral may be required
    Dresden, SN, DE 

    Maja Von Der Hagen practices practicing medicine in Dresden, Germany. Ms. Von Der Hagen is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Nemaline Myopathy, Achalasia Microcephaly Syndrome, and Thrombectomy.

    Learn about our expert tiers
    Advanced in Nemaline Myopathy

    Carsten Dittmayer
    Advanced in Nemaline Myopathy

    Carsten Dittmayer
    Referral may be required
    Berlin, BE, DE 

    Carsten Dittmayer practices practicing medicine in Berlin, Germany. Mr. Dittmayer is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Nemaline Myopathy, Myositis, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

    Advanced in Nemaline Myopathy

    Markus Schuelke
    Advanced in Nemaline Myopathy

    Markus Schuelke
    Referral may be required
    Berlin, BE, DE 

    Markus Schuelke practices practicing medicine in Berlin, Germany. Mr. Schuelke is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Maternally Inherited Leigh Syndrome, Allan-Herndon-Dudley Syndrome, Leigh Syndrome, and Triple A Syndrome.

    Advanced in Nemaline Myopathy

    Siegfried Labeit
    Advanced in Nemaline Myopathy

    Siegfried Labeit
    Referral may be required
    Heidelberg, BW, DE 

    Siegfried Labeit practices practicing medicine in Heidelberg, Germany. Mr. Labeit is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Dilated Cardiomyopathy (DCM), Muscle Atrophy, Nemaline Myopathy, and Cardiomyopathy.

    Experienced in Nemaline Myopathy

    Dietmar Schlembach
    Experienced in Nemaline Myopathy

    Dietmar Schlembach
    Referral may be required
    Neukolln, BE, DE 

    Dietmar Schlembach practices practicing medicine in Neukolln, Germany. Mr. Schlembach is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Preeclampsia, Intrauterine Growth Restriction, HELLP Syndrome, and High Blood Pressure in Infants.

    Experienced in Nemaline Myopathy

    Raphael J. Schneider
    Experienced in Nemaline Myopathy

    Raphael J. Schneider
    Referral may be required
    St Josef Hospital, 
    Bochum, NW, DE 

    Raphael Schneider practices practicing medicine in Bochum, Germany. Schneider is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Multiple Sclerosis (MS), Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in Nemaline Myopathy

    Jens Reimann
    Experienced in Nemaline Myopathy

    Jens Reimann
    Referral may be required
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Jens Reimann practices practicing medicine in Bonn, Germany. Mr. Reimann is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Congenital Contractures, Arthrogryposis Multiplex Congenita, Triple A Syndrome, and Inclusion Body Myositis.

    Experienced in Nemaline Myopathy

    Hellen C. Ankerhold-Ishikawa
    Experienced in Nemaline Myopathy

    Hellen C. Ankerhold-Ishikawa
    Referral may be required
    Munich, BY, DE 

    Hellen Ankerhold-Ishikawa practices practicing medicine in Munich, Germany. Ms. Ankerhold-Ishikawa is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Experienced in Nemaline Myopathy

    Gilbert Wunderlich
    Experienced in Nemaline Myopathy

    Gilbert Wunderlich
    Referral may be required
    Kerpener Str. 32, 
    Koeln, NW, DE 

    Gilbert Wunderlich practices practicing medicine in Koeln, Germany. Mr. Wunderlich is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Camptocormism, Spinocerebellar Ataxia Type 10, and Deep Brain Stimulation.

    Experienced in Nemaline Myopathy

    Tess Holling
    Experienced in Nemaline Myopathy

    Tess Holling
    Referral may be required
    Hamburg, HH, DE 

    Tess Holling practices practicing medicine in Hamburg, Germany. Ms. Holling is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses VLDLR-Associated Cerebellar Hypoplasia, Short Stature (Growth Disorders), Cerebellar Hypoplasia, and Camptodactyly Syndrome Guadalajara Type 1.

    Experienced in Nemaline Myopathy

    Ulrich A. Schatz
    Experienced in Nemaline Myopathy

    Ulrich A. Schatz
    Referral may be required
    Munich, BY, DE 

    Ulrich Schatz practices practicing medicine in Munich, Germany. Mr. Schatz is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ichthyosis Vulgaris, Yellow Nail Syndrome, Congenital Contractures, and Arthrogryposis Multiplex Congenita.

    Experienced in Nemaline Myopathy

    Matthias Turk
    Experienced in Nemaline Myopathy

    Matthias Turk
    Referral may be required
    Erlangen, BY, DE 

    Matthias Turk practices practicing medicine in Erlangen, Germany. Mr. Turk is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Myofibrillar Myopathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and SRD5A3-CDG.

    Experienced in Nemaline Myopathy

    Benedikt H. Schoser
    Experienced in Nemaline Myopathy

    Benedikt H. Schoser
    Referral may be required
    Munich, BY, DE 

    Benedikt Schoser practices practicing medicine in Munich, Germany. Mr. Schoser is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, Pompe Disease, and Thymectomy.

    Experienced in Nemaline Myopathy

    Rainer Rossi
    Experienced in Nemaline Myopathy

    Rainer Rossi
    Referral may be required
    Neukolln, BE, DE 

    Rainer Rossi practices practicing medicine in Neukolln, Germany. Mr. Rossi is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Neurocutaneous Melanosis, Mumps, Bronchopulmonary Dysplasia, and Necrotizing Enterocolitis.

    Experienced in Nemaline Myopathy

    Rolf J. Schroder
    Experienced in Nemaline Myopathy

    Rolf J. Schroder
    Referral may be required
    Erlangen, BY, DE 

    Rolf Schroder practices practicing medicine in Erlangen, Germany. Mr. Schroder is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Myofibrillar Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Experienced in Nemaline Myopathy

    Hermann C. Altmeppen
    Experienced in Nemaline Myopathy

    Hermann C. Altmeppen
    Referral may be required
    Hamburg, HH, DE 

    Hermann Altmeppen practices practicing medicine in Hamburg, Germany. Mr. Altmeppen is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Creutzfeldt-Jakob Disease, Alzheimer's Disease, Dementia, and Fatal Familial Insomnia.

    Experienced in Nemaline Myopathy

    Thorsten Wagner
    Experienced in Nemaline Myopathy

    Thorsten Wagner
    Referral may be required
    Warburger Str. 100, 
    Paderborn, NW, DE 

    Thorsten Wagner practices practicing medicine in Paderborn, Germany. Mr. Wagner is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in Nemaline Myopathy

    Ursula Schrehardt-Schlotzer
    Experienced in Nemaline Myopathy

    Ursula Schrehardt-Schlotzer
    Referral may be required
    Erlangen, BY, DE 

    Ursula Schrehardt-Schlotzer practices practicing medicine in Erlangen, Germany. Ms. Schrehardt-Schlotzer is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, Glaucoma, Corneal Transplant, and Cataract Removal.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 59

    Last Updated: 06/30/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.