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    Last Updated: 10/30/2025

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    MediFind found 56 doctor with experience in Nemaline Myopathy near Germany. Of these, 50 are Experienced, 5 are Advanced and 1 are Distinguished.

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    56 providers found
      Distinguished in Nemaline Myopathy

      Werner P. Stenzel
      Distinguished in Nemaline Myopathy

      Werner P. Stenzel

      Charité Universitätsmedizin

      Berlin, BE, DE 

      Werner Stenzel practices in Berlin, Germany. Mr. Stenzel is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myositis, Antisynthetase Syndrome, Polymyositis, and Dermatomyositis.

      Advanced in Nemaline Myopathy

      Maja Von Der Hagen
      Advanced in Nemaline Myopathy

      Maja Von Der Hagen
      Dresden, SN, DE 

      Maja Von Der Hagen practices in Dresden, Germany. Ms. Von Der Hagen is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Nemaline Myopathy, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Microcephaly, and Thrombectomy.

      Advanced in Nemaline Myopathy

      Hans H. Goebel
      Advanced in Nemaline Myopathy

      Hans H. Goebel

      Charité Universitätsmedizin

      Berlin, BE, DE 

      Hans Goebel practices in Berlin, Germany. Mr. Goebel is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Centronuclear Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Learn about our expert tiers
      Advanced in Nemaline Myopathy

      Carsten Dittmayer
      Advanced in Nemaline Myopathy

      Carsten Dittmayer
      Berlin, BE, DE 

      Carsten Dittmayer practices in Berlin, Germany. Mr. Dittmayer is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Nemaline Myopathy, Myositis, Tubular Aggregate Myopathy, and Congenital Fiber-Type Disproportion.

      Advanced in Nemaline Myopathy

      Siegfried Labeit
      Advanced in Nemaline Myopathy

      Siegfried Labeit
      Mannheim, BW, DE 

      Siegfried Labeit practices in Mannheim, Germany. Mr. Labeit is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Dilated Cardiomyopathy (DCM), Muscle Atrophy, Subacute Cerebellar Degeneration, and Cardiomyopathy.

      Advanced in Nemaline Myopathy

      Markus Schuelke
      Advanced in Nemaline Myopathy

      Markus Schuelke
      Berlin, BE, DE 

      Markus Schuelke practices in Berlin, Germany. Mr. Schuelke is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Maternally Inherited Leigh Syndrome, Allan-Herndon-Dudley Syndrome, Leigh Syndrome, and Cutis Laxa.

      Dietmar Schlembach
      Experienced in Nemaline Myopathy

      Dietmar Schlembach
      Experienced in Nemaline Myopathy

      Dietmar Schlembach

      Clinicum Neukoelln, Vivantes Network Of Health GmbH

      Berlin, BE, DE 

      Dietmar Schlembach practices in Berlin, Germany. Mr. Schlembach is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Preeclampsia, Intrauterine Growth Restriction, HELLP Syndrome, Placental Insufficiency, and Hysterectomy.

      Experienced in Nemaline Myopathy

      Raphael J. Schneider
      Experienced in Nemaline Myopathy

      Raphael J. Schneider
      St Josef Hospital, 
      Bochum, NW, DE 

      Raphael Schneider practices in Bochum, Germany. Schneider is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Their top areas of expertise are Amyotonia Congenita, Myotonia Congenita, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in Nemaline Myopathy

      Benedikt H. Schoser
      Experienced in Nemaline Myopathy

      Benedikt H. Schoser
      Munich, BY, DE 

      Benedikt Schoser practices in Munich, Germany. Mr. Schoser is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, Pompe Disease, and Thymectomy.

      Experienced in Nemaline Myopathy

      Jens Reimann
      Experienced in Nemaline Myopathy

      Jens Reimann
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Jens Reimann practices in Bonn, Germany. Mr. Reimann is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, Triple A Syndrome, and Cramp-Fasciculation Syndrome.

      Experienced in Nemaline Myopathy

      Hellen C. Ankerhold-Ishikawa
      Experienced in Nemaline Myopathy

      Hellen C. Ankerhold-Ishikawa
      Munich, BY, DE 

      Hellen Ankerhold-Ishikawa practices in Munich, Germany. Ms. Ankerhold-Ishikawa is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

      Experienced in Nemaline Myopathy

      Gilbert Wunderlich
      Experienced in Nemaline Myopathy

      Gilbert Wunderlich
      Kerpener Str. 32, 
      Koeln, NW, DE 

      Gilbert Wunderlich practices in Koeln, Germany. Mr. Wunderlich is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Camptocormism, Dysarthria, and Deep Brain Stimulation.

      Experienced in Nemaline Myopathy

      Ulrich A. Schatz
      Experienced in Nemaline Myopathy

      Ulrich A. Schatz
      Munich, BY, DE 

      Ulrich Schatz practices in Munich, Germany. Mr. Schatz is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Ichthyosis Vulgaris, Yellow Nail Syndrome, Arthrogryposis Multiplex Congenita, and Congenital Contractures.

      Experienced in Nemaline Myopathy

      Tess Holling
      Experienced in Nemaline Myopathy

      Tess Holling
      Hamburg, HH, DE 

      Tess Holling practices in Hamburg, Germany. Ms. Holling is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her top areas of expertise are Microcephaly Deafness Syndrome, VLDLR-Associated Cerebellar Hypoplasia, Cerebellar Hypoplasia, and Short Stature (Growth Disorders).

      Experienced in Nemaline Myopathy

      Matthias Turk
      Experienced in Nemaline Myopathy

      Matthias Turk
      Erlangen, BY, DE 

      Matthias Turk practices in Erlangen, Germany. Mr. Turk is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), SRD5A3-CDG, and Limb-Girdle Muscular Dystrophy.

      Experienced in Nemaline Myopathy

      Rainer Rossi
      Experienced in Nemaline Myopathy

      Rainer Rossi
      Neukolln, BE, DE 

      Rainer Rossi practices in Neukolln, Germany. Mr. Rossi is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Togaviridae Disease, Neurocutaneous Melanosis, Bronchopulmonary Dysplasia, and Mumps.

      Experienced in Nemaline Myopathy

      Reinier A. Boon
      Experienced in Nemaline Myopathy

      Reinier A. Boon
      Frankfurt Am Main, HE, DE 

      Reinier Boon practices in Frankfurt Am Main, Germany. Mr. Boon is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Thoracic Aortic Aneurysm, Heart Attack, Abdominal Aortic Aneurysm (AAA), and Atherosclerosis.

      Experienced in Nemaline Myopathy

      Rolf J. Schroder
      Experienced in Nemaline Myopathy

      Rolf J. Schroder
      Erlangen, BY, DE 

      Rolf Schroder practices in Erlangen, Germany. Mr. Schroder is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Myofibrillar Myopathy, Dominant Dystrophic Epidermolysis Bullosa, Dowling-Meara Epidermolysis Bullosa Simplex, and Tubular Aggregate Myopathy.

      Experienced in Nemaline Myopathy

      Thorsten Wagner
      Experienced in Nemaline Myopathy

      Thorsten Wagner
      Warburger Str. 100, 
      Paderborn, NW, DE 

      Thorsten Wagner practices in Paderborn, Germany. Mr. Wagner is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Experienced in Nemaline Myopathy

      Christian Hartmann
      Experienced in Nemaline Myopathy

      Christian Hartmann
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Christian Hartmann practices in Hannover, Germany. Mr. Hartmann is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His top areas of expertise are Glioma, Gliomatosis Cerebri, Astrocytoma, Brain Tumor, and Microvascular Decompression.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 56

      Last Updated: 10/30/2025

      What is the definition of Nemaline Myopathy?

      Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

      When should I see a Nemaline Myopathy doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Nemaline Myopathy doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Nemaline Myopathy doctor in Germany?

      You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Nemaline Myopathy doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Nemaline Myopathy doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Nemaline Myopathy doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

      Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Nemaline Myopathy doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Nemaline Myopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Nemaline Myopathy doctors in Germany?

      Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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