The 20 Best Nemaline Myopathy Doctors in Germany

Find the Top Nemaline Myopathy Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 59 doctor with experience in Nemaline Myopathy near Germany. Of these, 53 are Experienced, 5 are Advanced and 1 are Distinguished.

Location
LocationClose
59 providers found
    Distinguished in Nemaline Myopathy

    Werner P. Stenzel
    Distinguished in Nemaline Myopathy

    Werner P. Stenzel

    Charité Universitätsmedizin

    Berlin, BE, DE 

    Werner Stenzel practices practicing medicine in Berlin, Germany. Mr. Stenzel is rated as a Distinguished expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Myositis, Antisynthetase Syndrome, Polymyositis, and Dermatomyositis.

    Advanced in Nemaline Myopathy

    Hans H. Goebel
    Advanced in Nemaline Myopathy

    Hans H. Goebel

    Charité Universitätsmedizin

    Berlin, BE, DE 

    Hans Goebel practices practicing medicine in Berlin, Germany. Mr. Goebel is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Centronuclear Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Advanced in Nemaline Myopathy

    Maja Von Der Hagen
    Advanced in Nemaline Myopathy

    Maja Von Der Hagen
    Dresden, SN, DE 

    Maja Von Der Hagen practices practicing medicine in Dresden, Germany. Ms. Von Der Hagen is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Nemaline Myopathy, Achalasia Microcephaly Syndrome, and Thrombectomy.

    Learn about our expert tiers
    Advanced in Nemaline Myopathy

    Carsten Dittmayer
    Advanced in Nemaline Myopathy

    Carsten Dittmayer
    Berlin, BE, DE 

    Carsten Dittmayer practices practicing medicine in Berlin, Germany. Mr. Dittmayer is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Nemaline Myopathy, Myositis, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Advanced in Nemaline Myopathy

    Siegfried Labeit
    Advanced in Nemaline Myopathy

    Siegfried Labeit
    Mannheim, BW, DE 

    Siegfried Labeit practices practicing medicine in Mannheim, Germany. Mr. Labeit is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Dilated Cardiomyopathy (DCM), Muscle Atrophy, Nemaline Myopathy, and Cardiomyopathy.

    Advanced in Nemaline Myopathy

    Markus Schuelke
    Advanced in Nemaline Myopathy

    Markus Schuelke
    Berlin, BE, DE 

    Markus Schuelke practices practicing medicine in Berlin, Germany. Mr. Schuelke is rated as an Advanced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Maternally Inherited Leigh Syndrome, Allan-Herndon-Dudley Syndrome, Leigh Syndrome, and Triple A Syndrome.

    Experienced in Nemaline Myopathy

    Dietmar Schlembach
    Experienced in Nemaline Myopathy

    Dietmar Schlembach
    Neukolln, BE, DE 

    Dietmar Schlembach practices practicing medicine in Neukolln, Germany. Mr. Schlembach is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Preeclampsia, Intrauterine Growth Restriction, HELLP Syndrome, and High Blood Pressure in Infants.

    Experienced in Nemaline Myopathy

    Raphael J. Schneider
    Experienced in Nemaline Myopathy

    Raphael J. Schneider
    St Josef Hospital, 
    Bochum, NW, DE 

    Raphael Schneider practices practicing medicine in Bochum, Germany. Mr. Schneider is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Experienced in Nemaline Myopathy

    Jens Reimann
    Experienced in Nemaline Myopathy

    Jens Reimann
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Jens Reimann practices practicing medicine in Bonn, Germany. Mr. Reimann is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Arthrogryposis Multiplex Congenita, Congenital Contractures, Triple A Syndrome, and Inclusion Body Myositis.

    Experienced in Nemaline Myopathy

    Hellen C. Ankerhold-Ishikawa
    Experienced in Nemaline Myopathy

    Hellen C. Ankerhold-Ishikawa
    Munich, BY, DE 

    Hellen Ankerhold-Ishikawa practices practicing medicine in Munich, Germany. Ms. Ankerhold-Ishikawa is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. Her clinical expertise encompasses Nemaline Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    Experienced in Nemaline Myopathy

    Gilbert Wunderlich
    Experienced in Nemaline Myopathy

    Gilbert Wunderlich
    Kerpener Str. 32, 
    Koeln, NW, DE 

    Gilbert Wunderlich practices practicing medicine in Koeln, Germany. Mr. Wunderlich is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Camptocormism, Spinocerebellar Ataxia Type 10, and Deep Brain Stimulation.

    Experienced in Nemaline Myopathy

    Tess Holling
    Experienced in Nemaline Myopathy

    Tess Holling
    Hamburg, HH, DE 

    Tess Holling practices practicing medicine in Hamburg, Germany. Ms. Holling is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses VLDLR-Associated Cerebellar Hypoplasia, Short Stature (Growth Disorders), Cerebellar Hypoplasia, and Pyle Disease.

    Experienced in Nemaline Myopathy

    Ulrich A. Schatz
    Experienced in Nemaline Myopathy

    Ulrich A. Schatz
    Munich, BY, DE 

    Ulrich Schatz practices practicing medicine in Munich, Germany. Mr. Schatz is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Ichthyosis Vulgaris, Yellow Nail Syndrome, Arthrogryposis Multiplex Congenita, and Congenital Contractures.

    Experienced in Nemaline Myopathy

    Matthias Turk
    Experienced in Nemaline Myopathy

    Matthias Turk
    Erlangen, BY, DE 

    Matthias Turk practices practicing medicine in Erlangen, Germany. Mr. Turk is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), SRD5A3-CDG, and Limb-Girdle Muscular Dystrophy.

    Experienced in Nemaline Myopathy

    Benedikt H. Schoser
    Experienced in Nemaline Myopathy

    Benedikt H. Schoser
    Munich, BY, DE 

    Benedikt Schoser practices practicing medicine in Munich, Germany. Mr. Schoser is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy, Myotonic Dystrophy Type 2, Paramyotonia Congenita, Pompe Disease, and Thymectomy.

    Experienced in Nemaline Myopathy

    Hermann C. Altmeppen
    Experienced in Nemaline Myopathy

    Hermann C. Altmeppen
    Hamburg, HH, DE 

    Hermann Altmeppen practices practicing medicine in Hamburg, Germany. Mr. Altmeppen is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Creutzfeldt-Jakob Disease, Alzheimer's Disease, Dementia, and Fatal Familial Insomnia.

    Experienced in Nemaline Myopathy

    Ursula Schrehardt-Schlotzer
    Experienced in Nemaline Myopathy

    Ursula Schrehardt-Schlotzer
    Erlangen, BY, DE 

    Ursula Schrehardt-Schlotzer practices practicing medicine in Erlangen, Germany. Ms. Schrehardt-Schlotzer is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, Glaucoma, Corneal Transplant, and Cataract Removal.

    Experienced in Nemaline Myopathy

    Thorsten Wagner
    Experienced in Nemaline Myopathy

    Thorsten Wagner
    Warburger Str. 100, 
    Paderborn, NW, DE 

    Thorsten Wagner practices practicing medicine in Paderborn, Germany. Mr. Wagner is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Nemaline Myopathy, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Experienced in Nemaline Myopathy

    Stefan Raunser
    Experienced in Nemaline Myopathy

    Stefan Raunser
    Otto Hahn Str. 11, 
    Dortmund, NW, DE 

    Stefan Raunser practices practicing medicine in Dortmund, Germany. Mr. Raunser is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Bardet-Biedl Syndrome, Nemaline Myopathy, Anthrax Infection, and Congenital Fiber-Type Disproportion.

    Experienced in Nemaline Myopathy

    Rainer Rossi
    Experienced in Nemaline Myopathy

    Rainer Rossi
    Neukolln, BE, DE 

    Rainer Rossi practices practicing medicine in Neukolln, Germany. Mr. Rossi is rated as an Experienced expert by MediFind in the treatment of Nemaline Myopathy. His clinical expertise encompasses Neurocutaneous Melanosis, Mumps, Bronchopulmonary Dysplasia, and Necrotizing Enterocolitis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 59

    Last Updated: 04/28/2026

    What is the definition of Nemaline Myopathy?

    Nemaline myopathy is a disorder that primarily affects skeletal muscles, which are muscles that the body uses for movement. People with nemaline myopathy have muscle weakness (myopathy) throughout the body, but it is typically most severe in the muscles of the face; neck; trunk; and other muscles close to the center of the body (proximal muscles), such as those of the upper arms and legs. This weakness can worsen over time. Affected individuals may have feeding and swallowing difficulties, foot deformities, abnormal curvature of the spine (scoliosis), and joint deformities (contractures). Most people with nemaline myopathy are able to walk, although some affected children may begin walking later than usual. As the condition progresses, some people may require wheelchair assistance. In severe cases, the muscles used for breathing are affected and life-threatening breathing difficulties can occur.

    When should I see a Nemaline Myopathy doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Nemaline Myopathy doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Nemaline Myopathy doctor in Germany?

    You can find a Nemaline Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

    Nemaline Myopathy doctor near New York, NY
    Nemaline Myopathy doctor near Los Angeles, CA
    Nemaline Myopathy doctor near Chicago, IL
    Nemaline Myopathy doctor near Houston, TX
    Nemaline Myopathy doctor near Phoenix, AZ
    Nemaline Myopathy doctor near Philadelphia, PA
    Nemaline Myopathy doctor near Atlanta, GA
    Nemaline Myopathy doctor near Boston, MA
    Nemaline Myopathy doctor near Dallas, TX
    Nemaline Myopathy doctor near San Jose, CA

    How does MediFind rank Nemaline Myopathy doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Nemaline Myopathy doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Nemaline Myopathy doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Nemaline Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Nemaline Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Nemaline Myopathy doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Nemaline Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Nemaline Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Nemaline Myopathy doctors in Germany?

    Look for the filter feature on the left side of the Nemaline Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Nemaline Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Nemaline Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.