A Phase 3, Randomized, Double-Blind, Dose-Ranging Evaluation of Transcutaneous Vagus Nerve Stimulation (tVNS) to Reduce Temper Outbursts in People With Prader-Willi Syndrome (PWS)

Status: Recruiting
Location: See all (17) locations...
Intervention Type: Device
Study Type: Interventional
Study Phase: Phase 3
SUMMARY

The goal of the VNS4PWS clinical study is to test the efficacy, safety, and acceptability of transcutaneous vagus nerve stimulation (tVNS) treatment in people with PWS.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 10
Maximum Age: 40
Healthy Volunteers: f
View:

• Genetically proven diagnosis of PWS.

• Age 10-40 years.

• History in the last six months of an average of at least two temper outbursts per week.

• Able to comply with requirements of study and provide consent or assent; If consent is to be provided by the participant's guardian, same applies to the guardian.

• Concomitant use of psychiatric medication is allowed; participant must be on a stable dose 90 days prior to screening with no plans for dose modification during the course of the study.

• Concomitant use of psychotherapy/counseling is allowed. Therapies for mental health or behavior challenges, including applied behavior analysis (ABA) are also allowed; however, participant must be on a stable regimen 90 days prior to screening with no plans for modification during the course of the study.

• Living with family or in another setting with family members or staff willing to support the participant and the required data collection.

• Agree to share tVNS patient application compliance and daily temper outburst data with the sponsor.

• Access to cellular data or Wi-Fi.

⁃ Participant and caregiver speak American English as first language or are fluent in American English.

Locations
United States
California
Stanford University
RECRUITING
Palo Alto
Rady Children's Hospital San Diego
RECRUITING
San Diego
Colorado
Children's Hospital Colorado
RECRUITING
Aurora
Georgia
Emory University
RECRUITING
Atlanta
Rare Disease Research
RECRUITING
Atlanta
Maryland
Johns Hopkins Hospital
RECRUITING
Baltimore
Minnesota
University of Minnesota
RECRUITING
Minneapolis
Missouri
Children's Mercy Kansas City
RECRUITING
Kansas City
New York
Maimonides Medical Center
RECRUITING
Brooklyn
NYU Langone Health
RECRUITING
Garden City
Montefiore Medical Center and Albert Einstein College of Medicine
RECRUITING
The Bronx
Ohio
University Hospitals Cleveland Medical Center
RECRUITING
Cleveland
Nationwide Children's Hospital
RECRUITING
Columbus
Tennessee
Vanderbilt University Medical Center
RECRUITING
Nashville
Texas
Christus Children'S
RECRUITING
San Antonio
Utah
University of Utah
RECRUITING
Salt Lake City
Virginia
University of Virginia
RECRUITING
Charlottesville
Contact Information
Primary
Lisa Matesvac, AuD
VNS@fpwr.org
(760)420-5878
Backup
Caroline Vrana-Diaz, PhD
caroline@fpwr.org
Time Frame
Start Date: 2024-01-08
Estimated Completion Date: 2027-12-01
Participants
Target number of participants: 102
Treatments
Active_comparator: tVNS, Intermittent Stimulation
28 seconds on, 32 seconds off
Active_comparator: tVNS, Continuous Stimulation
continuous stimulation
Related Therapeutic Areas
Sponsors
Collaborators: RTI International
Leads: Foundation for Prader-Willi Research

This content was sourced from clinicaltrials.gov