Bonding Molecular Genotyping and Phenotyping to Outcome Measures in AL Amyloidosis: A EUropean REgistry and Sample Sharing networK to Promote the Diagnosis and Management of Light Chain Amyloidosis (EUREKA)
Status: Recruiting
Location: See all (6) locations...
Study Type: Observational
SUMMARY
A prospective patients' registry collecting all new cases of AL amyloidosis evaluated at referral Centers from across Europe and a sample sharing network will be created to study mechanisms of the disease through the use of advanced molecular technologies and big data analysis tools.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Maximum Age: 99
Healthy Volunteers: f
View:
• diagnosis of systemic AL amyloidosis;
• treatment-naïve;
• age ≥18 years;
• ability to understand and willingness to sign an informed consent;
• planned follow-up at participating center.
Locations
Other Locations
Germany
Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672
RECRUITING
Heidelberg
Italy
Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100
RECRUITING
Pavia
Netherlands
UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan
RECRUITING
Utrecht
Spain
Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra
RECRUITING
Pamplona
Switzerland
University of Applied Sciences and Arts Northwestern Switzerland, Institute of Medical Engineering and Medical Informatics
ACTIVE_NOT_RECRUITING
Muttenz
Uruguay
Universidad de la Republica Hospital de Clinicas Dr Manuel Quintela
RECRUITING
Montevideo
Contact Information
Primary
Giovanni Palladini
segreteria.amiloidosi@smatteo.pv.it
+390382502994
Time Frame
Start Date: 2024-01-01
Estimated Completion Date: 2026-06-01
Participants
Target number of participants: 400
Related Therapeutic Areas
Sponsors
Leads: Fondazione IRCCS Policlinico San Matteo di Pavia