PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: t
View:
• Clinical Diagnosis of Pulmonary Hypertension
Locations
Other Locations
Germany
University Giessen PH Center
RECRUITING
Giessen
Contact Information
Primary
Raphael W Majeed
raphael.majeed@innere.med.uni-giessen.de
+49 641 985 42502
Time Frame
Start Date: 2020-01-30
Estimated Completion Date: 2055-01-30
Participants
Target number of participants: 40000
Treatments
Patients with Pulmonary Hypertension
Patients with a diagnosis of pulmonary hypertension typically diagnosed via right heart catheterization.
Control Group
Participating PH centers can optionally provide data about patients with exclusion of pulmonary hypertension
Related Therapeutic Areas
Sponsors
Collaborators: National Hospital Organization Okayama Medical Center, Vanderbilt University Medical Center, Stanford University, National and Kapodistrian University of Athens, Milpark Hospital, Academy of Medical Sciences of Ukraine, The Methodist Hospital Research Institute, University of Minnesota, Gold Coast Hospital and Health Service, China-Japan Friendship Hospital, Fiona Stanley Hospital, Royal Prince Alfred Hospital, Sydney, Australia, Aristotle University Of Thessaloniki, Imperial College London, Johns Hopkins University, University Hospital, Zürich, Sunshine Coast University Hospital, Mayo Clinic, University of Pittsburgh, Hospital de Niños de la Santísima Trinidad, University of Pavia, University of Sheffield, Universidad Nacional de La Plata, Medical University of Graz, Royal Hobart Hospital, University Hospital of Targu Mures, Romania, University Hospital Heidelberg
Leads: University of Giessen