SBS DISK- Creation of a Quality of Life Tool for Short Bowel Patients Compared With a Validated Quality of Life Questionnaire (SBS QoL)
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
Patients with short bowel syndrome have an impact on their quality of life because they need temporary or permanent parenteral nutritional support. The quality of life of these patients has been the subject of several studies and assessment tools exist, such as the Short Bowel Syndrome Quality of Life (SBS QoL). This tool may seem complex and tedious to use in everyday practice. However, it is important to regularly assess the quality of life of these patients. This is why the investigators are proposing to create a new tool for more rapid assessment of the quality of life of patients with short bowel syndrome.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 18
Maximum Age: 99
Healthy Volunteers: f
View:
• Age 18 or over
• Patient able to read and speak French
• Patient suffering from short bowel syndrome
Locations
Other Locations
France
Hôpital Lyon Sud - CHLS
RECRUITING
Pierre-bénite
Contact Information
Primary
Charlotte BERGOIN, Doctor
charlotte.bergoin@chu-lyon.fr
+33 04.78.86.38.69
Backup
Stéphanie PECORA, Dietician
stephanie.pecora@chu-lyon.fr
+33 04.78.86.8.69
Time Frame
Start Date: 2025-01-15
Estimated Completion Date: 2027-01-01
Participants
Target number of participants: 100
Treatments
Questionnaire completion
The partient completes the two quality of life assessment questionnaires (Short Bowel Syndrome Quality of Life (SBS QoL) and SBS disk assessment tool), in paper format.
Related Therapeutic Areas
Sponsors
Leads: Hospices Civils de Lyon