Orphans Unite: chILD Better Together - European Management Platform for Childhood Interstitial Lung Diseases / chILD-EU - International Register and Biobank for Children´s Interstital Lung Disease
Status: Recruiting
Location: See all (3) locations...
Study Type: Observational
SUMMARY
Generation of a common European database and biobank Continous assessment and implementation of guidelines and treatment protocols Establishment of a large observational cohort of chILD patients Determination the value of outcomes used in child Assess treatment variations used, deliver data from defined protocols and linked outcomes
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• all children with suspected or
• verified diagnosis of ILD or
• masquerading as ILD and
• those with rare localized parenchymal lung diseases
Locations
Other Locations
Germany
Medizinische Hochschule Hannover
RECRUITING
Hanover
Turkey
Hacettepe University, Medical Faculty
RECRUITING
Ankara
United Kingdom
University of Edinburgh
RECRUITING
Edinburgh
Contact Information
Primary
Matthias Griese, Prof.
Matthias.Griese@med.uni-muenchen.de
+49/89/440057871
Backup
Katarzyna Michel, Dr. med.
Katarzyna.Michel@med.uni-muenchen.de
+49/89/440057878
Time Frame
Start Date: 2013-12
Estimated Completion Date: 2029-12
Participants
Target number of participants: 1000
Authors
Related Therapeutic Areas
Sponsors
Leads: Matthias Griese