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    Last Updated: 01/09/2026

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    MediFind found 9 doctor with experience in Zellweger Syndrome near Maryland, US. Of these, 5 are Experienced, 2 are Advanced, 1 are Distinguished and 1 are Elite.

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    LocationClose
    9 providers found
      Elite in Zellweger Syndrome
      Medical Genetics | Pediatrics
      Elite in Zellweger Syndrome
      Medical Genetics | Pediatrics
      601 N Caroline St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Nancy Braverman is a Medical Genetics specialist and a Pediatrics provider in Baltimore, Maryland. Dr. Braverman is rated as an Elite provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Zellweger Syndrome, Chondrodysplasia Punctata Syndrome, X-Linked Chondrodysplasia Punctata 2, and Acromesomelic Dysplasia.

      Gerald V. Raymond
      Distinguished in Zellweger Syndrome
      Pediatrics | Medical Genetics
      Distinguished in Zellweger Syndrome
      Pediatrics | Medical Genetics

      Rubenstein Child Health Building

      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Gerald Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital. He received additional training in developmental neuropathology at the Universite Catholique de Louvain in Belgium and clinical genetics at the Harvard Program. Dr. Raymond’s research has been at the overlap of genetics and neurology with specific focus on peroxisomal disorders including adrenoleukodystrophy. He has been actively involved in newborn screening for ALD and in developing clinical follow-up programs. He has extensive experience in clinical management of neurogenetic issues including peroxisomal and lysosomal disorders. He presently serves as the Director of the Lysosomal Storage Disease program in the department of Genetic Medicine. Dr. Raymond is rated as a Distinguished provider by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Zellweger Syndrome, and Leukodystrophy.

      Advanced in Zellweger Syndrome
      Internal Medicine
      Advanced in Zellweger Syndrome
      Internal Medicine

      Hollis Seunarine MD PA LLC

      2425 Eutaw Pl, Jai Medical Center, 
      Baltimore, MD 
      Languages Spoken:
      English

      Michael Hise is a primary care provider, practicing in Internal Medicine in Baltimore, Maryland. Dr. Hise is rated as an Advanced provider by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Zellweger Syndrome, Hepatitis C, Hypertension, and Familial Hypertension.

      Learn about our expert tiers
      Advanced in Zellweger Syndrome
      Family Medicine
      Advanced in Zellweger Syndrome
      Family Medicine
      8630 Fenton St, Suite 900, 
      Silver Spring, MD 
      Languages Spoken:
      English, French, Spanish
      Accepting New Patients

      Oliver Bennett is a primary care provider, practicing in Family Medicine in Silver Spring, Maryland. Dr. Bennett is rated as an Advanced provider by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Zellweger Syndrome, Insomnia, Middle East Respiratory Syndrome (MERS), and High Cholesterol. Dr. Bennett is currently accepting new patients.

      Sujatha Kannan
      Experienced in Zellweger Syndrome
      Intensive Care Medicine | Pediatrics
      Experienced in Zellweger Syndrome
      Intensive Care Medicine | Pediatrics

      The Johns Hopkins Hospital

      1800 Orleans Street, 
      Baltimore, MD 
      Languages Spoken:
      English, Tamil

      Dr. Sujatha Kannan is professor of anesthesiology and critical care medicine and pediatrics at the Johns Hopkins University School of Medicine. She is also the Richard J. Traystman Endowed Chair and the Vice Chair for Research for ACCM. She specializes in pediatric critical care with expertise in pediatric neurocritical care. In addition to her role at Johns Hopkins, Dr. Kannan is also a research scientist at the Hugo Moser Researcher Institute at Kennedy Krieger Institute. Dr. Kannan completed her medical training at the Jawaharlal Institute of Post Graduate Medical Education and Research in Pondicherry, India. She conducted residencies in pediatrics at the University Illinois at Chicago and the Children’s Hospital of Michigan. Additionally, she completed a fellowship in pediatric critical care medicine at the Children’s Hospital of Michigan. Dr. Kannan joined the Johns Hopkins faculty in 2011. Her research focuses on understanding the role of inflammation and immune dysregulation in the brain with a goal to develop therapies for childhood brain injury and neurodevelopmental disorders such as cerebral palsy, Rett syndrome, autism, TBI and CNS infections. In collaboration with the Kannan Rangaramanujam lab at the Center for Nanomedicine, Wilmer Eye Institute, the S. Kannan lab has created and developed novel nanotherapies to specifically target immune cells in the brain to promote repair and regeneration. Dr. Kannan is a member of the Society for Neuroscience, the Society of Critical Care Medicine, and the Society for Pediatric Research. She is a fellow of the American Institute for Medical and Biological Engineering. She has published extensively and has won several awards for her research. Dr. Kannan is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Traumatic Brain Injury, Zellweger Syndrome, Cerebral Hypoxia, Cerebral Artery Bypass Surgery, and Extracranial-Intracranial Bypass Surgery.

      Kristin Baranano
      Experienced in Zellweger Syndrome
      Pediatric Neurology | Neurology
      Experienced in Zellweger Syndrome
      Pediatric Neurology | Neurology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Barañano earned her M.D. and Ph.D. degrees from the Johns Hopkins University School of Medicine, where she also completed residencies in pediatrics and neurology, along with a fellowship in neurogenetics at the Kennedy Krieger Institute. Dr. Barañano is an Associate Professor of Clinical Neurology. She specializes in the diagnosis and management of rare neurogenetic disorders. She has a particular interest in the genetic control and function of the cerebellum and expertise in childhood-onset and inherited ataxias. She is a member of the multidisciplinary Fetal Management group and is available for prenatal consultations. Dr. Barañano's research includes collaborative efforts with the Johns Hopkins Department of Genetic Medicine and the Division of Neurogenetics at the Kennedy Krieger Institute. Dr. Baranano is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Hypotonia, Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Focal or Multifocal Malformations in Neuronal Migration, and Hereditary Ataxia.

      Experienced in Zellweger Syndrome
      Ophthalmology
      Experienced in Zellweger Syndrome
      Ophthalmology
      600 N Wolfe St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Donald Zack is an Ophthalmologist in Baltimore, Maryland. Dr. Zack is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, and Trabeculectomy.

      Experienced in Zellweger Syndrome
      Pediatrics
      Experienced in Zellweger Syndrome
      Pediatrics
      2401 W Belvedere Ave, 
      Baltimore, MD 
      Languages Spoken:
      English

      Paul Lee is a Pediatrics provider in Baltimore, Maryland. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. His top areas of expertise are Zellweger Syndrome, Progressive Multifocal Leukoencephalopathy, Infantile Refsum Disease, and Childhood Volvulus.

      Experienced in Zellweger Syndrome
      Medical Genetics
      Experienced in Zellweger Syndrome
      Medical Genetics
      Kennedy Krieger Institute, 707 N Broadway Rm 526, 
      Baltimore, MD 
      Languages Spoken:
      English

      Suzette Huguenin is a Medical Genetics provider in Baltimore, Maryland. Dr. Huguenin is rated as an Experienced provider by MediFind in the treatment of Zellweger Syndrome. Her top areas of expertise are Zellweger Syndrome and Adrenoleukodystrophy (ALD).

      Showing 1-9 of 9

      Last Updated: 01/09/2026

      What is the definition of Zellweger Syndrome?

      Zellweger syndrome is the most severe form of a spectrum of conditions called Zellweger spectrum. The signs and symptoms of Zellweger syndrome typically appear during the newborn period and may include poor muscle tone (hypotonia), poor feeding, seizures, hearing loss, vision loss, distinctive facial features, and skeletal abnormalities. Affected children also develop life-threatening problems in other organs and tissues, such as the liver, heart, and kidneys. Zellweger syndrome is caused by genetic changes in any one of at least 12 genes; genetic changes in the PEX1 gene are the most common cause. It is inherited in an autosomal recessive manner.

      When should I see a Zellweger Syndrome doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Zellweger Syndrome doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Zellweger Syndrome doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Zellweger Syndrome doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Zellweger Syndrome doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Zellweger Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Zellweger Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Zellweger Syndrome doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Zellweger Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Zellweger Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Zellweger Syndrome doctors in Maryland, US?

      Look for the filter feature on the left side of the Zellweger Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Zellweger Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Zellweger Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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