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    Last Updated: 01/09/2026

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    MediFind found 12 doctor with experience in Heterotaxy Syndrome near Virginia, US. Of these, 9 are Experienced and 3 are Advanced.

    Location
    LocationClose
    12 providers found
      Experienced in Heterotaxy Syndrome
      Thoracic Surgery
      Experienced in Heterotaxy Syndrome
      Thoracic Surgery
      601 Childrens Ln, 
      Norfolk, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      James Gangemi is a Thoracic Surgeon in Norfolk, Virginia. Dr. Gangemi is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Heterotaxy Syndrome, Pulmonary Valve Stenosis, and Atrioventricular Septal Defect. Dr. Gangemi is currently accepting new patients.

      Advanced in Heterotaxy Syndrome
      Pediatric Cardiology
      Advanced in Heterotaxy Syndrome
      Pediatric Cardiology

      Children's National Medical Center

      7603 Forest Ave Ste 401, 
      Richmond, VA 
      Languages Spoken:
      English

      Mary Donofrio is a Pediatric Cardiologist in Richmond, Virginia. Dr. Donofrio is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Vascular Ring, Double Aortic Arch, Ebstein's Anomaly, and Septoplasty.

      Advanced in Heterotaxy Syndrome
      Family Medicine
      Advanced in Heterotaxy Syndrome
      Family Medicine

      Stephens City Family Medicine LLC

      160 Warrior Dr, 
      Stephens City, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jennifer Carter is a primary care provider, practicing in Family Medicine in Stephens City, Virginia. Dr. Carter is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Heterotaxy Syndrome, Obesity, Obesity in Children, and High Cholesterol. Dr. Carter is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Heterotaxy Syndrome
      Internal Medicine
      Advanced in Heterotaxy Syndrome
      Internal Medicine
      3034 Valley Ave, Suite 102, 
      Winchester, VA 
      Languages Spoken:
      English

      Brenda Arnett is a primary care provider, practicing in Internal Medicine in Winchester, Virginia. Dr. Arnett is rated as an Advanced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Heterotaxy Syndrome, Melorheostosis, Melorheostosis with Osteopoikilosis, and Osteopenia.

      Experienced in Heterotaxy Syndrome
      Thoracic Surgery | Pediatric Surgery
      Experienced in Heterotaxy Syndrome
      Thoracic Surgery | Pediatric Surgery
      1215 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Umar Boston is a Thoracic Surgeon and a Pediatric Surgeon in Charlottesville, Virginia. Dr. Boston is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Ebstein's Anomaly, Hypoplastic Left Heart Syndrome (HLHS), Heterotaxy Syndrome, Heart Transplant, and Lung Transplant. Dr. Boston is currently accepting new patients.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      UVA Health Pediatric Cardiology

      1204 W Main St Fl 6, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Shelby White is a Pediatric Cardiologist in Charlottesville, Virginia. Dr. White is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Tetralogy of Fallot, Ventricular Septal Defects, Patent Ductus Arteriosus, Gastrostomy, and Heart Transplant.

      Experienced in Heterotaxy Syndrome
      Experienced in Heterotaxy Syndrome
      20209 Sentara Way, Ste 200, 
      Carrollton, VA 
      Languages Spoken:
      English
      Accepting New Patients

      Bartholomew Lopresti is a primary care provider, practicing in Family Medicine in Carrollton, Virginia. Dr. Lopresti is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are High Cholesterol, Vitamin D Deficiency, Anemia, and Tenosynovitis. Dr. Lopresti is currently accepting new patients.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      The Battle Building At UVA Children's Hospital

      1204 W Main St, 
      Charlottesville,, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Jeffrey Vergales is a Pediatric Cardiologist in Charlottesville,, Virginia. Dr. Vergales is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Ventricular Septal Defects, Patent Ductus Arteriosus, and Mitral Atresia.

      Experienced in Heterotaxy Syndrome
      Thoracic Surgery
      Experienced in Heterotaxy Syndrome
      Thoracic Surgery

      Children's Hospital Of Richmond At VCU

      1000 E Broad St, 
      Richmond, VA 
      Languages Spoken:
      English

      Ivan Rebeyka is a Thoracic Surgeon in Richmond, Virginia. Dr. Rebeyka is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Atrioventricular Septal Defect, Cardiac Tamponade, Congenital Heart Disease (CHD), and Heart Transplant.

      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology
      Experienced in Heterotaxy Syndrome
      Pediatric Cardiology

      UVA Health Pediatric Cardiology

      1204 W Main St Fl 6, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Peter Dean is a Pediatric Cardiologist in Charlottesville, Virginia. Dr. Dean is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Truncus Arteriosus, Ventricular Septal Defects, Congenital Heart Disease (CHD), and Gastrostomy.

      Experienced in Heterotaxy Syndrome
      Internal Medicine
      Experienced in Heterotaxy Syndrome
      Internal Medicine

      Loudoun Medical Care PC

      19415 Deerfield Ave, 
      Lansdowne, VA 
      Languages Spoken:
      English, Hindi, Kashmiri, Nepali, Sanskrit, Sindhi, Urdu
      Accepting New Patients
      Offers Telehealth

      Mandeep Sandhu is a primary care provider, practicing in Internal Medicine in Lansdowne, Virginia. Dr. Sandhu is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. Her top areas of expertise are Vitamin D Deficiency, Heterotaxy Syndrome, Maturity Onset Diabetes of the Young, and Glucocorticoid-Remediable Aldosteronism. Dr. Sandhu is currently accepting new patients.

      Experienced in Heterotaxy Syndrome
      General Surgery
      Experienced in Heterotaxy Syndrome
      General Surgery

      UVA Health University Medical Center

      1215 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English

      Irving Kron is a General Surgeon in Charlottesville, Virginia. Dr. Kron is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. His top areas of expertise are Mitral Valve Regurgitation, Thoracic Aortic Aneurysm, Ebstein's Anomaly, Coronary Artery Bypass Graft (CABG), and Heart Bypass Surgery.

      Showing 1-12 of 12

      Last Updated: 01/09/2026

      What is the definition of Heterotaxy Syndrome?

      Heterotaxy syndrome is a condition in which the internal organs are abnormally arranged in the chest and abdomen. The term "heterotaxy" is from the Greek words "heteros," meaning "other than," and "taxis," meaning "arrangement." Individuals with this condition have complex birth defects affecting the heart, lungs, liver, spleen, intestines, and other organs.

      When should I see a Heterotaxy Syndrome doctor in Virginia, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Heterotaxy Syndrome doctor in Virginia, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Heterotaxy Syndrome doctors in Virginia, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Heterotaxy Syndrome doctors in Virginia, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Heterotaxy Syndrome doctor in Virginia, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Heterotaxy Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Heterotaxy Syndrome doctor in Virginia, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Heterotaxy Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Heterotaxy Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Heterotaxy Syndrome doctors in Virginia, US?

      Look for the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Heterotaxy Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Heterotaxy Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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