Last Updated: 09/26/2026
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Found 65 publications
"Stop 'em if you've got 'em!" - Determinants and Consequences of CF Treatment Availability in Discontinuation Research.
Journal: Annals of the American Thoracic Society
Published: July 21, 2026
Utilization of Des-Gamma-Carboxy-Prothrombin in Estimating Vitamin K Status in People With Cystic Fibrosis: A Single Center Retrospective Review.
Journal: Pediatric pulmonology
Published: January 17, 2026
Effects of azithromycin in young adults with cystic fibrosis: a protocol for emulating a published randomised controlled trial using registry data.
Journal: BMJ open
Published: March 25, 2025
Improving Modulator Management and Side Effect Screening: A CF Learning Network Innovation Lab.
Journal: Pediatric pulmonology
Published: February 14, 2025
"Time out for an hour, every day, my whole life": understanding treatment burden in cystic fibrosis in the era of Elexacaftor/Tezacaftor/Ivacaftor (ETI).
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: December 20, 2024
Developing a framework for clinical conversations using a qualitative analysis of the patient experience of SIMPLIFY.
Journal: Patient education and counseling
Published: October 15, 2024
Room to breathe: The promise of a more flexible cystic fibrosis care model.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: September 26, 2024
Impact of Discontinuing Both Hypertonic Saline and Dornase Alfa after Elexacaftor-Tezacaftor-Ivacaftor in Cystic Fibrosis.
Journal: Annals of the American Thoracic Society
Published: July 23, 2024
Qualitative understanding of experiences of people with cystic fibrosis in a treatment discontinuation trial: The QUEST study.
Journal: Contemporary clinical trials
Published: July 22, 2024
What does it mean to be "healthy" when taking elexacaftor/tezacaftor/ivacaftor (ETI)? A qualitative study.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: June 24, 2024
Self-reported chronic therapy use after 24-weeks of follow-up by participants who completed the simplify randomized, controlled trial.
Journal: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society
Published: April 28, 2024
C-Reactive Protein Changes in Adult and Pediatric People With Cystic Fibrosis During Treatment of Pulmonary Exacerbations.
Journal: Pediatric pulmonology
Published: February 15, 2024
Last Updated: 09/26/2026