Angela J. Rylands

London, ENG, United Kingdom

Last Updated: 09/26/2026

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Found 17 publications

Designing and Implementing Real World Patient Reported Outcomes (RW- PROs) - Emerging Recommendations: A Good Practices Report of an ISPOR Task Force.

Designing and Implementing Real World Patient Reported Outcomes (RW- PROs) - Emerging Recommendations: A Good Practices Report of an ISPOR Task Force.

Journal: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research

Published: February 14, 2026

Designing and Implementing Real-World Patient-Reported Outcomes-Emerging Recommendations: A Good Practices Report of an ISPOR Task Force.

Designing and Implementing Real-World Patient-Reported Outcomes-Emerging Recommendations: A Good Practices Report of an ISPOR Task Force.

Journal: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research

Published: February 14, 2026

Psychometric Evaluation of Skin Pain and Sleep Disturbance Numeric Rating Scales in Moderate-to-Severe Atopic Dermatitis.

Psychometric Evaluation of Skin Pain and Sleep Disturbance Numeric Rating Scales in Moderate-to-Severe Atopic Dermatitis.

Journal: Dermatology and therapy

Published: October 31, 2025

Health-related quality of life in French adults with X-linked hypophosphatemia: real-world data from the International XLH Registry.

Health-related quality of life in French adults with X-linked hypophosphatemia: real-world data from the International XLH Registry.

Journal: JBMR plus

Published: October 28, 2025

The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis.

The lived experience of adolescents with X-linked hypophosphataemia treated with burosumab at end of skeletal growth: a mixed-methods analysis.

Journal: PloS one

Published: September 24, 2025

Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth.

Adolescents' experience of living with X-linked hypophosphataemia (XLH): a mixed-methods analysis of those who continued and discontinued burosumab treatment after end of skeletal growth.

Journal: Orphanet journal of rare diseases

Published: September 04, 2025

Health-related quality of life in French pediatric patients with X-linked hypophosphatemia: real-world data from the International XLH Registry.

Health-related quality of life in French pediatric patients with X-linked hypophosphatemia: real-world data from the International XLH Registry.

Journal: JBMR plus

Published: March 07, 2025

Rocatinlimab Improves Patient-Reported Outcomes in Adults with Moderate-to-Severe Atopic Dermatitis: Results from a Double-Blind Placebo-Controlled Phase 2b Study.

Rocatinlimab Improves Patient-Reported Outcomes in Adults with Moderate-to-Severe Atopic Dermatitis: Results from a Double-Blind Placebo-Controlled Phase 2b Study.

Journal: Dermatology and therapy

Published: September 30, 2024

Impact of stopping burosumab treatment at the end of skeletal growth in adolescents with X-linked hypophosphatemia (XLH).

Impact of stopping burosumab treatment at the end of skeletal growth in adolescents with X-linked hypophosphatemia (XLH).

Journal: Bone reports

Published: September 17, 2024

Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study.

Health-related quality of life and productivity burden for non-professional caregivers of adults with rare diseases: a real-world study.

Journal: Orphanet journal of rare diseases

Published: August 11, 2023

A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH).

A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH).

Journal: PloS one

Published: June 23, 2023

Development and Psychometric Validation of the 27 Item Zarit Caregiver Interview for Alzheimer's Disease (ZCI-AD-27).

Development and Psychometric Validation of the 27 Item Zarit Caregiver Interview for Alzheimer's Disease (ZCI-AD-27).

Journal: Current Alzheimer research

Published: October 10, 2022

Showing 1-12 of 17

Last Updated: 09/26/2026