Anne-sophie E. Darlington

Rotterdam, ZH, Netherlands

Last Updated: 09/26/2026

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Found 111 publications

Development and Testing of VOICES-C: A Questionnaire for Assessing the Quality and Experiences of End-of-Life Care for Children and Their Families.

Development and Testing of VOICES-C: A Questionnaire for Assessing the Quality and Experiences of End-of-Life Care for Children and Their Families.

Journal: Journal of palliative care

Published: May 20, 2026

Development of an age specific EORTC questionnaire to assess the health-related quality of life (HRQOL) of children with cancer aged 8-14 years - a mixed-methods content elicitation phase I & II EORTC QLG study.

Development of an age specific EORTC questionnaire to assess the health-related quality of life (HRQOL) of children with cancer aged 8-14 years - a mixed-methods content elicitation phase I & II EORTC QLG study.

Journal: European journal of cancer (Oxford, England : 1990)

Published: May 05, 2026

Assessing the Validity and Acceptability of an Adult Quality of Life Questionnaire, the EORTC QLQ-C30, for Adolescents With Cancer.

Assessing the Validity and Acceptability of an Adult Quality of Life Questionnaire, the EORTC QLQ-C30, for Adolescents With Cancer.

Journal: Cancer medicine

Published: February 26, 2026

Development of a Health-Related Quality of Life Tool for Adolescents and Young Adults With Cancer.

Development of a Health-Related Quality of Life Tool for Adolescents and Young Adults With Cancer.

Journal: JAMA network open

Published: February 03, 2026

Knowledge Representation of a Multicenter Adolescent and Young Adult Cancer Infrastructure: Development of the STRONG AYA Knowledge Graph.

Knowledge Representation of a Multicenter Adolescent and Young Adult Cancer Infrastructure: Development of the STRONG AYA Knowledge Graph.

Journal: JCO clinical cancer informatics

Published: January 14, 2026

"They had to watch": How parents perceive the suffering of siblings of children with cancer.

"They had to watch": How parents perceive the suffering of siblings of children with cancer.

Journal: Palliative & supportive care

Published: October 10, 2025

Suffering is a Useful Concept When We Understand the Sufferer.

Suffering is a Useful Concept When We Understand the Sufferer.

Journal: The American journal of bioethics : AJOB

Published: July 30, 2025

SUPPORT MY WAY: Supporting Young People After Treatment for Cancer: What Is Needed, When This Is Needed and How This Can Be Best Delivered.

SUPPORT MY WAY: Supporting Young People After Treatment for Cancer: What Is Needed, When This Is Needed and How This Can Be Best Delivered.

Journal: Current oncology (Toronto, Ont.)

Published: May 24, 2025

Navigating Romantic Relationships and Sexual Intimacy: Challenges and Opportunities for Adolescents and Young Adults With Cancer - A Literature Review of Qualitative Studies.

Navigating Romantic Relationships and Sexual Intimacy: Challenges and Opportunities for Adolescents and Young Adults With Cancer - A Literature Review of Qualitative Studies.

Journal: Psycho-oncology

Published: May 22, 2025

Development of a core outcome set for adolescents and young adults with cancer.

Development of a core outcome set for adolescents and young adults with cancer.

Journal: The Lancet. Oncology

Published: May 08, 2025

Supporting families after the unexpected death of a child.

Supporting families after the unexpected death of a child.

Journal: BMJ (Clinical research ed.)

Published: April 28, 2025

Bereaved Parents' Perspectives on Quality Pediatric End-of-Life Care: A Scoping Review.

Bereaved Parents' Perspectives on Quality Pediatric End-of-Life Care: A Scoping Review.

Journal: Cochrane evidence synthesis and methods

Published: April 02, 2025

Showing 1-12 of 111

Last Updated: 09/26/2026