Birgitte Lykkeberg

Copenhagen, Denmark

Last Updated: 09/26/2026

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Found 10 publications

Distribution-based thresholds for clinically important differences in patient-reported outcomes for adults with congenital heart disease.

Distribution-based thresholds for clinically important differences in patient-reported outcomes for adults with congenital heart disease.

Journal: European journal of cardiovascular nursing

Published: April 04, 2026

Advance Care Planning in Adults with Congenital Heart Diseases: current practices, preferences and needs of 8,281 adults from 32 countries.

Advance Care Planning in Adults with Congenital Heart Diseases: current practices, preferences and needs of 8,281 adults from 32 countries.

Journal: The Canadian journal of cardiology

Published: September 21, 2025

Advance Care Planning in Adults With Congenital Heart Diseases: Current Practices, Preferences, and Needs of 8,281 Adults From 32 Countries.

Advance Care Planning in Adults With Congenital Heart Diseases: Current Practices, Preferences, and Needs of 8,281 Adults From 32 Countries.

Journal: The Canadian journal of cardiology

Published: September 21, 2025

Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries.

Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries.

Journal: International journal of cardiology

Published: June 21, 2025

Quality of Life in Adults With Transposition of the Great Arteries With a Systemic Right or Left Ventricle.

Quality of Life in Adults With Transposition of the Great Arteries With a Systemic Right or Left Ventricle.

Journal: The Canadian journal of cardiology

Published: May 14, 2025

Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries.

Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries.

Journal: Heart (British Cardiac Society)

Published: October 28, 2024

Experiences and expectations of parents when young people with congenital heart disease transfer from pediatric to adult care: A qualitative systematic review.

Experiences and expectations of parents when young people with congenital heart disease transfer from pediatric to adult care: A qualitative systematic review.

Journal: Journal of child health care : for professionals working with children in the hospital and community

Published: February 09, 2024

Frailty and Cognitive Function in Middle-Aged and Older Adults With Congenital Heart Disease.

Frailty and Cognitive Function in Middle-Aged and Older Adults With Congenital Heart Disease.

Journal: Journal of the American College of Cardiology

Published: October 31, 2023

Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease.

Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease.

Journal: International journal of cardiology

Published: April 20, 2022

Experiences and expectations of parents when young people with congenital heart disease transfer from pediatric to adult care: a systematic review protocol.

Experiences and expectations of parents when young people with congenital heart disease transfer from pediatric to adult care: a systematic review protocol.

Journal: JBI evidence synthesis

Published: March 21, 2020

Showing 1-10 of 10

Last Updated: 09/26/2026