Charissa M. Frank
Koersel, VLG, Belgium
Last Updated: 09/26/2026
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Found 19 publications
Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET.
Journal: The Lancet. Rheumatology
Published: July 29, 2025
Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET.
Journal: The Lancet. Rheumatology
Published: July 29, 2025
Addressing unmet needs in pregnancy and family planning of people living with rare and low-prevalence diseases: results of the "ERN transversal working group on pregnancy and family planning" survey.
Journal: Reproductive health
Published: February 26, 2025
Coding systems and monitoring practices across the ERN ReCONNET: insights from a comprehensive survey and unmet needs.
Journal: Orphanet journal of rare diseases
Published: December 19, 2024
Improving organisation to improve care: ERN ReCONNET organisational reference model for systemic sclerosis patients' care pathway.
Journal: Journal of scleroderma and related disorders
Published: June 03, 2024
Long-term outcomes of COVID-19 vaccination in patients with rare and complex connective tissue diseases: The ERN-ReCONNET VACCINATE study.
Journal: Journal of translational autoimmunity
Published: September 07, 2023
Publisher Correction: The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.
Journal: Nature reviews. Rheumatology
Published: October 06, 2022
The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET.
Journal: Clinical and experimental rheumatology
Published: February 09, 2022
Atypical variants in COL1A1 and COL3A1 associated with classical and vascular Ehlers-Danlos syndrome overlap phenotypes: expanding the clinical phenotype based on additional case reports.
Journal: Clinical and experimental rheumatology
Published: November 29, 2021
The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET.
Journal: Nature reviews. Rheumatology
Published: December 08, 2020
Exploring patient education unmet needs for rare and complex connective tissue and musculoskeletal diseases: A survey of health care providers' and patients' expectations in Europe.
Journal: Chronic illness
Published: October 23, 2020
Last Updated: 09/26/2026